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How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Overview of attention for article published in Orphanet Journal of Rare Diseases, February 2021
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (92nd percentile)
  • High Attention Score compared to outputs of the same age and source (95th percentile)

Mentioned by

policy
1 policy source
twitter
31 X users
wikipedia
2 Wikipedia pages

Citations

dimensions_citation
28 Dimensions

Readers on

mendeley
76 Mendeley
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Title
How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study
Published in
Orphanet Journal of Rare Diseases, February 2021
DOI 10.1186/s13023-020-01664-6
Pubmed ID
Authors

Amy Simpson, Lara Bloom, Naomi J. Fulop, Emma Hudson, Kerry Leeson-Beevers, Stephen Morris, Angus I. G. Ramsay, Alastair G. Sutcliffe, Holly Walton, Amy Hunter

X Demographics

X Demographics

The data shown below were collected from the profiles of 31 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 76 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 76 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 8 11%
Student > Bachelor 8 11%
Researcher 8 11%
Student > Master 6 8%
Student > Doctoral Student 5 7%
Other 6 8%
Unknown 35 46%
Readers by discipline Count As %
Medicine and Dentistry 10 13%
Psychology 7 9%
Nursing and Health Professions 7 9%
Arts and Humanities 5 7%
Business, Management and Accounting 3 4%
Other 8 11%
Unknown 36 47%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 29. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 February 2023.
All research outputs
#1,371,125
of 25,732,188 outputs
Outputs from Orphanet Journal of Rare Diseases
#147
of 3,179 outputs
Outputs of similar age
#40,035
of 548,172 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#4
of 91 outputs
Altmetric has tracked 25,732,188 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 94th percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,179 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done particularly well, scoring higher than 95% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 548,172 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 92% of its contemporaries.
We're also able to compare this research output to 91 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 95% of its contemporaries.