Title |
Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey
|
---|---|
Published in |
Journal of Cystic Fibrosis, July 2016
|
DOI | 10.1016/j.jcf.2016.07.001 |
Pubmed ID | |
Authors |
Susan Madge, Scott C. Bell, Pierre- Régis Burgel, Karleen De Rijcke, Francesco Blasi, J. Stuart Elborn, on behalf of the ERS/ECFS task force: The provision of care for adults with cystic fibrosis in Europe |
Abstract |
There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe. An online survey designed by clinicians and patient representatives to explore level of service. Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams. This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 25% |
Unknown | 3 | 75% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 2 | 50% |
Members of the public | 1 | 25% |
Science communicators (journalists, bloggers, editors) | 1 | 25% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Brazil | 1 | 2% |
Unknown | 41 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 9 | 21% |
Student > Bachelor | 5 | 12% |
Other | 4 | 10% |
Student > Doctoral Student | 4 | 10% |
Researcher | 4 | 10% |
Other | 8 | 19% |
Unknown | 8 | 19% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 16 | 38% |
Nursing and Health Professions | 4 | 10% |
Engineering | 2 | 5% |
Social Sciences | 2 | 5% |
Sports and Recreations | 2 | 5% |
Other | 4 | 10% |
Unknown | 12 | 29% |