| Title |
Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families
|
|---|---|
| Published in |
Journal of Autism and Developmental Disorders, October 2012
|
| DOI | 10.1007/s10803-012-1680-z |
| Pubmed ID | |
| Authors |
Stephen G. Post, John Pomeroy, Carla C. Keirns, Virginia Isaacs Cover, Michael Leverett Dorn, Louis Boroson, Florence Boroson, Anne Coulehan, Jack Coulehan, Kim Covell, Kim Kubasek, Elizabeth Luchsinger, Shana Nichols, James Parles, Linda Schreiber, Samara P. Tetenbaum, Rose Ann Walsh |
| Abstract |
The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on "top-down" imposition of professional expertise but rather on "bottom-up" grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. |
X Demographics
The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Canada | 1 | 50% |
| Unknown | 1 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Scientists | 2 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 96 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | 1% |
| Unknown | 95 | 99% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 21 | 22% |
| Student > Master | 16 | 17% |
| Researcher | 8 | 8% |
| Student > Doctoral Student | 8 | 8% |
| Student > Bachelor | 8 | 8% |
| Other | 17 | 18% |
| Unknown | 18 | 19% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 32 | 33% |
| Social Sciences | 17 | 18% |
| Medicine and Dentistry | 7 | 7% |
| Nursing and Health Professions | 6 | 6% |
| Arts and Humanities | 5 | 5% |
| Other | 9 | 9% |
| Unknown | 20 | 21% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 23 October 2012.
All research outputs
#16,188,009
of 23,867,274 outputs
Outputs from Journal of Autism and Developmental Disorders
#4,003
of 5,240 outputs
Outputs of similar age
#112,996
of 178,188 outputs
Outputs of similar age from Journal of Autism and Developmental Disorders
#51
of 63 outputs
Altmetric has tracked 23,867,274 research outputs across all sources so far. This one is in the 21st percentile – i.e., 21% of other outputs scored the same or lower than it.
So far Altmetric has tracked 5,240 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 13.2. This one is in the 18th percentile – i.e., 18% of its peers scored the same or lower than it.
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We're also able to compare this research output to 63 others from the same source and published within six weeks on either side of this one. This one is in the 17th percentile – i.e., 17% of its contemporaries scored the same or lower than it.