Title |
Sense of Self in Alzheimer’s Research Participants
|
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Published in |
Clinical Nursing Research, October 2016
|
DOI | 10.1177/1054773816672671 |
Pubmed ID | |
Authors |
Ragnhild Hedman, Ingrid Hellström, Britt-Marie Ternestedt, Görel Hansebo, Astrid Norberg |
Abstract |
The sense of self is vulnerable in people with Alzheimer's disease (AD), and might be positively and negatively influenced by research participation. The purpose of this study was to describe how people with AD express their experience of being a research participant with respect to their sense of self. Interviews and support group conversations involving 13 people with mild and moderate AD were analyzed using qualitative content analysis. Three themes were constructed: contributing to an important cause, gaining from participating, and experiencing risks and drawbacks. Participants described contributing to research as being in line with their lifelong values and lifestyles. They expressed contentment and pride about being research participants, emphasized their positive relationships with the researchers, and described participation as a meaningful activity. When research procedures threatened their sense of self, they were able to reason about risks and decline participation. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 2 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 1 | 50% |
Members of the public | 1 | 50% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 20 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Bachelor | 5 | 25% |
Researcher | 4 | 20% |
Student > Ph. D. Student | 2 | 10% |
Student > Master | 2 | 10% |
Student > Doctoral Student | 1 | 5% |
Other | 3 | 15% |
Unknown | 3 | 15% |
Readers by discipline | Count | As % |
---|---|---|
Nursing and Health Professions | 6 | 30% |
Social Sciences | 4 | 20% |
Psychology | 3 | 15% |
Agricultural and Biological Sciences | 1 | 5% |
Neuroscience | 1 | 5% |
Other | 2 | 10% |
Unknown | 3 | 15% |