| Title |
Family and healthcare professionals’ perceptions of a pilot hospice at home programme for children: a qualitative study
|
|---|---|
| Published in |
BMC Palliative Care, October 2016
|
| DOI | 10.1186/s12904-016-0161-0 |
| Pubmed ID | |
| Authors |
Maria Brenner, Michael Connolly, Des Cawley, Frances Howlin, Jay Berry, Claire Quinn |
| Abstract |
Parents commonly report a significant improvement in quality of life following the provision of hospice and supportive care and have identified a need for such a service in the home. The purpose of this study was to understand the experiences of families receiving a nurse led pilot hospice at home programme and the experiences of healthcare professionals delivering and engaging with the programme. An exploratory, qualitative study was conducted, including telephone interviews with parents and focus groups and individual interviews with healthcare professionals. All parents of families who received the programme of care between June 2014 and September 2015 and healthcare professionals delivering and engaging with the programme were invited to participate. Seven parents participated in telephone interviews. Four focus groups took place, two with external stakeholders (18 participants in total), one with in-patient hospice staff (13 participants) and one with the hospice at home team (8 participants). Two additional interviews took place with individual stakeholders who were unable to attend a scheduled focus group. Themes from interviews with parents focused on the value of having consistent and expert care. The findings from healthcare professionals centred on communication within and across services, education and training and lone working. The pilot hospice at home programme was welcomed by all those who took part in the study. The programme may be improved by enhanced clarification of roles, enhanced access to multi-disciplinary services, greater communication across services and improved information provision to families. |
X Demographics
The data shown below were collected from the profiles of 7 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Ireland | 2 | 29% |
| Unknown | 5 | 71% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 5 | 71% |
| Practitioners (doctors, other healthcare professionals) | 2 | 29% |
Mendeley readers
The data shown below were compiled from readership statistics for 106 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 106 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 13 | 12% |
| Student > Ph. D. Student | 11 | 10% |
| Researcher | 10 | 9% |
| Student > Doctoral Student | 10 | 9% |
| Lecturer | 5 | 5% |
| Other | 20 | 19% |
| Unknown | 37 | 35% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 28 | 26% |
| Psychology | 9 | 8% |
| Medicine and Dentistry | 7 | 7% |
| Social Sciences | 7 | 7% |
| Engineering | 2 | 2% |
| Other | 8 | 8% |
| Unknown | 45 | 42% |
Attention Score in Context
This research output has an Altmetric Attention Score of 4. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 01 November 2016.
All research outputs
#7,090,111
of 23,881,329 outputs
Outputs from BMC Palliative Care
#779
of 1,308 outputs
Outputs of similar age
#103,478
of 316,378 outputs
Outputs of similar age from BMC Palliative Care
#11
of 15 outputs
Altmetric has tracked 23,881,329 research outputs across all sources so far. This one has received more attention than most of these and is in the 70th percentile.
So far Altmetric has tracked 1,308 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.6. This one is in the 40th percentile – i.e., 40% of its peers scored the same or lower than it.
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We're also able to compare this research output to 15 others from the same source and published within six weeks on either side of this one. This one is in the 33rd percentile – i.e., 33% of its contemporaries scored the same or lower than it.