Title |
Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges
|
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Published in |
The Patient - Patient-Centered Outcomes Research, November 2016
|
DOI | 10.1007/s40271-016-0206-8 |
Pubmed ID | |
Authors |
Ahmed Rashid, Victoria Thomas, Toni Shaw, Gillian Leng |
Abstract |
Clinical guidelines and health technology assessments are valuable instruments to improve the quality of healthcare delivery and aim to integrate the best available evidence with real-world, expert context. The role of patient and public involvement in their development has grown in recent decades, and this article considers the international literature exploring aspects of this participation, including the integration of experiential and scientific knowledge, recruitment strategies, models of involvement, stages of involvement, and methods of evaluation. These developments have been underpinned by the parallel rise of public involvement and evidence-based medicine as important concepts in health policy. Improving the recruitment of guideline group chairs, widening evidence reviews to include patient preference studies, adapting guidance presentation to highlight patient preference points and providing clearer instructions on how patient organisations can submit their intelligence are emerging proposals that may further enhance patient and public involvement in their processes. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 20 | 38% |
Canada | 3 | 6% |
Australia | 3 | 6% |
New Zealand | 3 | 6% |
Unknown | 24 | 45% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 36 | 68% |
Scientists | 13 | 25% |
Practitioners (doctors, other healthcare professionals) | 3 | 6% |
Science communicators (journalists, bloggers, editors) | 1 | 2% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 94 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 14 | 15% |
Other | 11 | 12% |
Student > Master | 11 | 12% |
Student > Ph. D. Student | 9 | 10% |
Student > Doctoral Student | 8 | 9% |
Other | 17 | 18% |
Unknown | 24 | 26% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 19 | 20% |
Nursing and Health Professions | 13 | 14% |
Psychology | 8 | 9% |
Social Sciences | 8 | 9% |
Pharmacology, Toxicology and Pharmaceutical Science | 5 | 5% |
Other | 16 | 17% |
Unknown | 25 | 27% |