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Privacy and Anonymity Challenges When Collecting Data for Public Health Purposes

Overview of attention for article published in The Journal of Law, Medicine & Ethics, January 2021
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Title
Privacy and Anonymity Challenges When Collecting Data for Public Health Purposes
Published in
The Journal of Law, Medicine & Ethics, January 2021
DOI 10.1111/jlme.12036
Pubmed ID
Authors

Khaled El Emam, Ester Moher

Abstract

Two contemporary problems face public health professionals in collecting data from health care providers: the de-identification of geospatial information in a manner that still allows meaningful analysis, and ensuring that provider performance data (e.g., infection or screening rates) is complete and accurate. In this paper, we discuss new methods for de-identifying geographic information that will allow useful de-identified data to be disclosed to public health. In addition, we propose privacy preserving mechanisms that will likely encourage providers to disclose complete and accurate data. However, this must be accompanied by steps to grow trust between the providers and public health.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 25 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 4%
Unknown 24 96%

Demographic breakdown

Readers by professional status Count As %
Researcher 6 24%
Student > Master 5 20%
Student > Ph. D. Student 5 20%
Other 2 8%
Student > Bachelor 2 8%
Other 3 12%
Unknown 2 8%
Readers by discipline Count As %
Medicine and Dentistry 5 20%
Computer Science 3 12%
Psychology 3 12%
Agricultural and Biological Sciences 2 8%
Nursing and Health Professions 2 8%
Other 7 28%
Unknown 3 12%