Title |
Privacy and Anonymity Challenges When Collecting Data for Public Health Purposes
|
---|---|
Published in |
The Journal of Law, Medicine & Ethics, January 2021
|
DOI | 10.1111/jlme.12036 |
Pubmed ID | |
Authors |
Khaled El Emam, Ester Moher |
Abstract |
Two contemporary problems face public health professionals in collecting data from health care providers: the de-identification of geospatial information in a manner that still allows meaningful analysis, and ensuring that provider performance data (e.g., infection or screening rates) is complete and accurate. In this paper, we discuss new methods for de-identifying geographic information that will allow useful de-identified data to be disclosed to public health. In addition, we propose privacy preserving mechanisms that will likely encourage providers to disclose complete and accurate data. However, this must be accompanied by steps to grow trust between the providers and public health. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 1 | 50% |
Unknown | 1 | 50% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 2 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Spain | 1 | 4% |
Unknown | 24 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 6 | 24% |
Student > Master | 5 | 20% |
Student > Ph. D. Student | 5 | 20% |
Other | 2 | 8% |
Student > Bachelor | 2 | 8% |
Other | 3 | 12% |
Unknown | 2 | 8% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 5 | 20% |
Computer Science | 3 | 12% |
Psychology | 3 | 12% |
Agricultural and Biological Sciences | 2 | 8% |
Nursing and Health Professions | 2 | 8% |
Other | 7 | 28% |
Unknown | 3 | 12% |