| Title |
Misunderstandings Concerning Genetics Among Patients Confronting Genetic Disease
|
|---|---|
| Published in |
Journal of Genetic Counseling, May 2010
|
| DOI | 10.1007/s10897-010-9307-z |
| Pubmed ID | |
| Authors |
Robert L. Klitzman |
| Abstract |
Critical questions arise about misunderstandings of genetics. We interviewed for 2 h each, 64 individuals who had or were at risk for Huntington's disease (HD), breast cancer or Alpha-1 antitrypsin deficiency. These individuals revealed various misunderstandings that can affect coping, and testing, treatment and reproductive decisions. A therapeutic misconception about testing appeared: that testing would be helpful in and of itself. Many believed they could control genetic disorders (even HD), yet these beliefs were often incorrect, and could impede coping, testing, and treatment. Misunderstandings about statistics and genetics often fueled each other, and reflected denial, and desires for hope and control. Emotional needs can thus outweigh understandings of genetics and statistics, and providers' input. Individuals often maintained non-scientific beliefs, though embarrassed by these. These data have implications for care, and public and professional education. Misunderstandings' persistence, despite realization of their inaccuracy, suggests that providers need to address not just cognitive facts, but underlying emotional issues. |
Mendeley readers
The data shown below were compiled from readership statistics for 94 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 2 | 2% |
| Philippines | 1 | 1% |
| Italy | 1 | 1% |
| Unknown | 90 | 96% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 19 | 20% |
| Student > Ph. D. Student | 16 | 17% |
| Researcher | 12 | 13% |
| Student > Bachelor | 9 | 10% |
| Student > Doctoral Student | 6 | 6% |
| Other | 10 | 11% |
| Unknown | 22 | 23% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 19 | 20% |
| Agricultural and Biological Sciences | 11 | 12% |
| Social Sciences | 9 | 10% |
| Biochemistry, Genetics and Molecular Biology | 9 | 10% |
| Psychology | 9 | 10% |
| Other | 15 | 16% |
| Unknown | 22 | 23% |
Attention Score in Context
This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 September 2012.
All research outputs
#5,859,794
of 22,709,015 outputs
Outputs from Journal of Genetic Counseling
#337
of 1,140 outputs
Outputs of similar age
#28,046
of 95,744 outputs
Outputs of similar age from Journal of Genetic Counseling
#2
of 6 outputs
Altmetric has tracked 22,709,015 research outputs across all sources so far. This one has received more attention than most of these and is in the 73rd percentile.
So far Altmetric has tracked 1,140 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.9. This one has gotten more attention than average, scoring higher than 69% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 95,744 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 70% of its contemporaries.
We're also able to compare this research output to 6 others from the same source and published within six weeks on either side of this one. This one has scored higher than 4 of them.