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Health care as perceived by persons with inflammatory bowel disease – a focus group study

Overview of attention for article published in Journal of Clinical Nursing, March 2017
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Title
Health care as perceived by persons with inflammatory bowel disease – a focus group study
Published in
Journal of Clinical Nursing, March 2017
DOI 10.1111/jocn.13740
Pubmed ID
Authors

Katarina Pihl Lesnovska, Gunilla Hollman Frisman, Henrik Hjortswang, Katarina Hjelm, Sussanne Börjeson

Abstract

The aim of this study was to explore the perceptions of healthcare among persons living with inflammatory bowel disease. The quality of care plays an important role in the life of persons with a chronic disease. In order to define what persons with inflammatory bowel disease perceive as high quality care, greater focus must be placed on the individual's own perspective of living with the condition. A qualitative exploratory study was conducted based on focus groups. Five focus groups were conducted with adult persons living with inflammatory bowel disease, fourteen men and twelve women aged 19-76 years. The interviews were performed between January and June 2014. The perceptions of healthcare from the perspective of persons living with inflammatory bowel disease were summarized in two categories: "Professional attitudes of healthcare staff" and "Structure of the healthcare organization". Persons with Inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision-making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organization comprises access to care, accommodation, continuity of care, as well as the pros and cons of specialized care. The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs - but there is room for improvement in terms of quality of care RELEVANCE TO CLINICAL PRACTICE: A person-centred approach, which place the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high quality healthcare organization for patients with IBD. This article is protected by copyright. All rights reserved.

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Mendeley readers

The data shown below were compiled from readership statistics for 70 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 70 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 12 17%
Student > Master 11 16%
Student > Ph. D. Student 8 11%
Researcher 6 9%
Student > Postgraduate 4 6%
Other 10 14%
Unknown 19 27%
Readers by discipline Count As %
Nursing and Health Professions 16 23%
Medicine and Dentistry 12 17%
Psychology 10 14%
Social Sciences 5 7%
Engineering 2 3%
Other 5 7%
Unknown 20 29%