| Title |
Person-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support
|
|---|---|
| Published in |
BMC Nephrology, January 2017
|
| DOI | 10.1186/s12882-016-0416-2 |
| Pubmed ID | |
| Authors |
Kathryn Havas, Clint Douglas, Ann Bonner |
| Abstract |
People with chronic kidney disease (CKD) must self-manage their illness to assist with slowing disease-progression, but this is a complex task requiring support from healthcare professionals. Despite the established importance of person-centred care, people with CKD are rarely consulted regarding their desires for self-management support (SMS). A cross-sectional survey was conducted face-to-face in a Queensland primary care clinic and distributed Australia-wide via an online interface promoted by Kidney Health Australia during 2015. Participants were ≥18 years old and had a self-reported doctor's diagnosis of CKD (any stage; N = 97). The survey was based upon existent literature which identified 10 areas that those with CKD believe require additional support. Descriptive data were generated and Mann-Whitney U tests were performed to compare the desires of different groups of participants. Of the 97 participants, 36 completed a hardcopy survey in clinic, and 61 completed the online version. Just over half (60.8%) were female, age ranged from 16-89 (M = 56.44), and time since diagnosis ranged from just diagnosed to 60 years (Mdn = 8.08 years). Strong interest in receiving additional support across all 10 areas was reported (Mdns = 8.00-10.00), with "keeping a positive attitude and taking care of mental and physical health" receiving the highest rating. Those who were: younger (p < .001); more highly educated (p < .001); working (p < .001); diagnosed longer ago (p = .015); and women (p = .050) expressed stronger overall desire for additional support. In addition to information about CKD and medications, everyday strategies ought to be prioritised in patient education. Varying levels of engagement and eagerness to learn more about self-management highlight the need for a person-centred approach to SMS. |
X Demographics
The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Australia | 1 | 50% |
| Canada | 1 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 162 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 162 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 26 | 16% |
| Student > Bachelor | 18 | 11% |
| Student > Ph. D. Student | 17 | 10% |
| Researcher | 16 | 10% |
| Other | 9 | 6% |
| Other | 26 | 16% |
| Unknown | 50 | 31% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 41 | 25% |
| Medicine and Dentistry | 23 | 14% |
| Psychology | 10 | 6% |
| Social Sciences | 6 | 4% |
| Biochemistry, Genetics and Molecular Biology | 4 | 2% |
| Other | 21 | 13% |
| Unknown | 57 | 35% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 31 January 2017.
All research outputs
#15,437,553
of 22,947,506 outputs
Outputs from BMC Nephrology
#1,463
of 2,491 outputs
Outputs of similar age
#257,564
of 421,782 outputs
Outputs of similar age from BMC Nephrology
#38
of 54 outputs
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