| Title |
Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer
|
|---|---|
| Published in |
Quality of Life Research, March 2017
|
| DOI | 10.1007/s11136-017-1520-x |
| Pubmed ID | |
| Authors |
Samantha C. Sodergren, Olga Husson, Jessica Robinson, Gudrun E. Rohde, Iwona M. Tomaszewska, Bella Vivat, Rebecca Dyar, Anne-Sophie Darlington, On behalf of the EORTC Quality of Life Group |
| Abstract |
For adolescents and young adults (AYAs), the impact of a cancer diagnosis and subsequent treatment is likely to be distinct from other age groups given the unique and complex psychosocial challenges of this developmental phase. In this review of the literature, we report the health-related quality of life (HRQoL) issues experienced by AYAs diagnosed with cancer and undergoing treatment. MEDLINE, EMBASE, CINAHL, PsychINFO and the Cochrane Library Databases were searched for publications reporting HRQoL of AYAs. Issues generated from interviews with AYAs or from responses to patient reported outcome measures (PROMs) were extracted. 166 papers were reviewed in full and comprised 72 papers covering 69 primary studies, 49 measurement development or evaluation papers and 45 reviews. Of the 69 studies reviewed, 11 (16%) used interviews to elicit AYAs' descriptions of HRQoL issues. The majority of the PROMs used in the studies represent adaptations of paediatric or adult measures. HRQoL issues were organised into the following categories: physical, cognitive, restricted activities, relationships with others, fertility, emotions, body image and spirituality/outlook on life. The HRQoL issues presented within this review are likely to be informative to health care professionals and AYAs. The extensive list of issues suggests that the impact of a cancer diagnosis and treatment during adolescence and young adulthood is widespread and reflects the complexities of this developmental phase. |
X Demographics
The data shown below were collected from the profiles of 51 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 17 | 33% |
| United States | 3 | 6% |
| Greece | 2 | 4% |
| Canada | 2 | 4% |
| Australia | 2 | 4% |
| Germany | 2 | 4% |
| Comoros | 1 | 2% |
| Sweden | 1 | 2% |
| Austria | 1 | 2% |
| Other | 1 | 2% |
| Unknown | 19 | 37% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 29 | 57% |
| Scientists | 11 | 22% |
| Practitioners (doctors, other healthcare professionals) | 9 | 18% |
| Science communicators (journalists, bloggers, editors) | 2 | 4% |
Mendeley readers
The data shown below were compiled from readership statistics for 256 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 256 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 41 | 16% |
| Student > Ph. D. Student | 25 | 10% |
| Researcher | 23 | 9% |
| Student > Bachelor | 23 | 9% |
| Other | 15 | 6% |
| Other | 46 | 18% |
| Unknown | 83 | 32% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 54 | 21% |
| Nursing and Health Professions | 40 | 16% |
| Psychology | 39 | 15% |
| Social Sciences | 10 | 4% |
| Neuroscience | 4 | 2% |
| Other | 19 | 7% |
| Unknown | 90 | 35% |
Attention Score in Context
This research output has an Altmetric Attention Score of 33. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 October 2020.
All research outputs
#1,219,600
of 25,517,918 outputs
Outputs from Quality of Life Research
#56
of 3,074 outputs
Outputs of similar age
#24,336
of 324,773 outputs
Outputs of similar age from Quality of Life Research
#2
of 78 outputs
Altmetric has tracked 25,517,918 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 95th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,074 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.1. This one has done particularly well, scoring higher than 98% of its peers.
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We're also able to compare this research output to 78 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 98% of its contemporaries.