| Title |
Unmet need for healthcare services in adolescents and young adults with cancer and their parent carers
|
|---|---|
| Published in |
Supportive Care in Cancer, March 2017
|
| DOI | 10.1007/s00520-017-3630-y |
| Pubmed ID | |
| Authors |
Susan M. Sawyer, Robyn McNeil, Maria McCarthy, Lisa Orme, Kate Thompson, Sarah Drew, David Dunt |
| Abstract |
Cancer in adolescents in and young adults (AYA) has the potential to disrupt health, well-being and developmental trajectories. This study aimed to describe the healthcare support service needs of AYAs with cancer and parent carers and to explore the association of unmet need and emotional distress. As part of a national Australian survey of 15-25 year olds with cancer and a nominated parent carer, 196 AYAs reported total and unmet need for 10 clinical services and 204 parents reported on their child's and their own healthcare service needs. Proportions of total and unmet need for specific clinical services are reported. The association of unmet service needs and distress (measured using the Posttraumatic Stress Disorder Checklist) was also examined. AYAs and parent carers expressed high total need for clinical services during treatment. Leading AYA unmet needs were for an exercise therapist (37%), genetic counsellor (30%), dietitian (26%), peer support group (26%) and educational and vocational advisor (24%). After treatment, AYAs and parents had fewer total needs. However, 60% of AYA and 38% of parents had two or more unmet needs, similar to during treatment. Female gender and receiving treatment in an adult setting were significantly associated with unmet need for clinical services. After treatment, higher distress levels in AYAs and parents were associated with two or more unmet service needs. AYAs and parents had high levels of total and unmet service need, which were associated with greater emotional distress. These results highlight opportunities to re-orientate services to better meet AYA and parent needs. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Canada | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Practitioners (doctors, other healthcare professionals) | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 128 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 128 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 18 | 14% |
| Student > Master | 16 | 13% |
| Researcher | 12 | 9% |
| Student > Bachelor | 9 | 7% |
| Student > Doctoral Student | 7 | 5% |
| Other | 20 | 16% |
| Unknown | 46 | 36% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 22 | 17% |
| Psychology | 17 | 13% |
| Medicine and Dentistry | 13 | 10% |
| Social Sciences | 11 | 9% |
| Sports and Recreations | 4 | 3% |
| Other | 8 | 6% |
| Unknown | 53 | 41% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 07 March 2017.
All research outputs
#18,536,772
of 22,958,253 outputs
Outputs from Supportive Care in Cancer
#3,640
of 4,634 outputs
Outputs of similar age
#237,972
of 311,212 outputs
Outputs of similar age from Supportive Care in Cancer
#63
of 80 outputs
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