| Title |
Attitudes of Mothers of Children with Down Syndrome Towards Noninvasive Prenatal Testing
|
|---|---|
| Published in |
Journal of Genetic Counseling, February 2014
|
| DOI | 10.1007/s10897-014-9694-7 |
| Pubmed ID | |
| Authors |
Gregory Kellogg, Leah Slattery, Louanne Hudgins, Kelly Ormond |
| Abstract |
Noninvasive prenatal testing (NIPT) allows for highly sensitive detection of Down syndrome early in pregnancy with no risk of miscarriage, therefore potentially increasing the number of pregnancies identified with Down syndrome. This study assesses how mothers of children with Down syndrome perceive NIPT, especially the impact they think it will have on their families and other families with children who have Down syndrome. Seventy-three self-reported mothers of children with Down syndrome responded to an anonymous online survey emailed to, and posted on, message boards of various Down syndrome support groups and networks. Data analysis included chi-square tests and thematic analysis. Fifty-nine percent of respondents indicated they would use NIPT in the future; respondents who had not used prenatal testing in the past were significantly less likely to report interest in using NIPT in the future than those who had prenatal testing previously (p < .001). Many respondents felt NIPT could lead to increased terminations (88 %), increased social stigma (57 %), and decreased availability of services for individuals with Down syndrome (64 %). However, only 16 % believed availability of new noninvasive tests would be the most important factor in determining the number of pregnancies with Down syndrome terminated in the future. Additionally, 48 % believed health care providers give biased or incorrect information about Down syndrome at the time of diagnosis, and 24 % felt this incorrect information leads to terminations of pregnancies affected with Down syndrome. Results suggest although mothers of children with Down syndrome believe new noninvasive testing will lead to an increase in termination of pregnancies with Down syndrome, they do not think it is the MOST important factor. They also highlight the need to provide a diagnosis of Down syndrome in a balanced and objective manner. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Japan | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 137 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| New Zealand | 1 | <1% |
| Philippines | 1 | <1% |
| United States | 1 | <1% |
| Unknown | 134 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 27 | 20% |
| Student > Master | 25 | 18% |
| Student > Ph. D. Student | 22 | 16% |
| Researcher | 14 | 10% |
| Student > Doctoral Student | 9 | 7% |
| Other | 21 | 15% |
| Unknown | 19 | 14% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 36 | 26% |
| Nursing and Health Professions | 20 | 15% |
| Agricultural and Biological Sciences | 17 | 12% |
| Biochemistry, Genetics and Molecular Biology | 12 | 9% |
| Psychology | 12 | 9% |
| Other | 16 | 12% |
| Unknown | 24 | 18% |
Attention Score in Context
This research output has an Altmetric Attention Score of 11. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 01 April 2019.
All research outputs
#2,975,468
of 23,758,334 outputs
Outputs from Journal of Genetic Counseling
#153
of 1,192 outputs
Outputs of similar age
#35,991
of 311,308 outputs
Outputs of similar age from Journal of Genetic Counseling
#2
of 18 outputs
Altmetric has tracked 23,758,334 research outputs across all sources so far. Compared to these this one has done well and is in the 87th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,192 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 6.0. This one has done well, scoring higher than 87% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 311,308 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 88% of its contemporaries.
We're also able to compare this research output to 18 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 94% of its contemporaries.