| Title |
Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults
|
|---|---|
| Published in |
Journal of Autism and Developmental Disorders, July 2017
|
| DOI | 10.1007/s10803-017-3254-6 |
| Pubmed ID | |
| Authors |
Renske Herrema, Deborah Garland, Malcolm Osborne, Mark Freeston, Emma Honey, Jacqui Rodgers |
| Abstract |
Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. |
X Demographics
The data shown below were collected from the profiles of 65 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 19 | 29% |
| United States | 8 | 12% |
| Spain | 6 | 9% |
| Venezuela, Bolivarian Republic of | 3 | 5% |
| Georgia | 1 | 2% |
| Mexico | 1 | 2% |
| Finland | 1 | 2% |
| Chile | 1 | 2% |
| Canada | 1 | 2% |
| Other | 0 | 0% |
| Unknown | 24 | 37% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 53 | 82% |
| Scientists | 6 | 9% |
| Practitioners (doctors, other healthcare professionals) | 5 | 8% |
| Science communicators (journalists, bloggers, editors) | 1 | 2% |
Mendeley readers
The data shown below were compiled from readership statistics for 59 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 59 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Researcher | 10 | 17% |
| Student > Doctoral Student | 9 | 15% |
| Student > Master | 7 | 12% |
| Student > Bachelor | 5 | 8% |
| Student > Ph. D. Student | 5 | 8% |
| Other | 7 | 12% |
| Unknown | 16 | 27% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 19 | 32% |
| Social Sciences | 14 | 24% |
| Medicine and Dentistry | 4 | 7% |
| Nursing and Health Professions | 1 | 2% |
| Arts and Humanities | 1 | 2% |
| Other | 1 | 2% |
| Unknown | 19 | 32% |
Attention Score in Context
This research output has an Altmetric Attention Score of 56. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 November 2023.
All research outputs
#772,389
of 25,654,806 outputs
Outputs from Journal of Autism and Developmental Disorders
#228
of 5,484 outputs
Outputs of similar age
#15,810
of 327,495 outputs
Outputs of similar age from Journal of Autism and Developmental Disorders
#5
of 94 outputs
Altmetric has tracked 25,654,806 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 96th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 5,484 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 13.4. This one has done particularly well, scoring higher than 95% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 327,495 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 95% of its contemporaries.
We're also able to compare this research output to 94 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 94% of its contemporaries.