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Research Consent for People with Dual Disability

Overview of attention for article published in International Journal of Mental Health Nursing, May 2014
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Title
Research Consent for People with Dual Disability
Published in
International Journal of Mental Health Nursing, May 2014
DOI 10.1111/inm.12079
Pubmed ID
Authors

Chris Taua, Christine Neville, Julie Hepworth

Abstract

Balancing the demands of research and ethics is always challenging, and even more so when recruiting vulnerable groups. Within the context of current legislation and international human rights declarations, it is strongly advocated that research can and must be undertaken with all recipients of health-care services. Research in the field of intellectual disability presents particular challenges in regards to consenting processes. This paper is a reflective overview and analysis of the complex processes undertaken, and events that occurred in gaining informed consent from people with intellectual disability to participate in a study exploring their experiences of being an inpatient in mental health hospitals within Aotearoa/New Zealand. A framework based on capacity, information, and voluntariness is presented, with excerpts from the field provided to explore consenting processes. The practical implications of the processes utilized are then discussed in order to stimulate debate regarding clearer and enhanced methods of gaining informed consent from people with intellectual disability.

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The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 79 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Japan 1 1%
Unknown 78 99%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 14 18%
Student > Master 13 16%
Student > Doctoral Student 9 11%
Student > Bachelor 7 9%
Researcher 5 6%
Other 13 16%
Unknown 18 23%
Readers by discipline Count As %
Social Sciences 15 19%
Psychology 13 16%
Nursing and Health Professions 12 15%
Medicine and Dentistry 9 11%
Arts and Humanities 3 4%
Other 8 10%
Unknown 19 24%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 March 2015.
All research outputs
#19,977,226
of 24,549,201 outputs
Outputs from International Journal of Mental Health Nursing
#1,384
of 1,447 outputs
Outputs of similar age
#169,069
of 231,720 outputs
Outputs of similar age from International Journal of Mental Health Nursing
#9
of 11 outputs
Altmetric has tracked 24,549,201 research outputs across all sources so far. This one is in the 10th percentile – i.e., 10% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,447 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 11.6. This one is in the 2nd percentile – i.e., 2% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 231,720 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 13th percentile – i.e., 13% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 11 others from the same source and published within six weeks on either side of this one. This one is in the 18th percentile – i.e., 18% of its contemporaries scored the same or lower than it.