| Title |
Don’t Give Up! A Cyber-ethnography and Discourse Analysis of an Online Infertility Patient Forum
|
|---|---|
| Published in |
Culture, Medicine, and Psychiatry, January 2017
|
| DOI | 10.1007/s11013-016-9515-6 |
| Pubmed ID | |
| Authors |
Mihan Lee |
| Abstract |
Infertility affects women across the socioeconomic spectrum; however, it is by no means egalitarian in its distribution, nor uniform in its lived experience. Evidence shows striking disparities by income, race, and education in infertility prevalence, access to infertility services, and success rates after receiving infertility treatments. However, few studies so far have investigated disparities in patients' access to psychological support during the infertility journey. This paper undertakes a cyber-ethnography of the online patient forum, "Finding a Resolution for Infertility," hosted by RESOLVE: The National Infertility Association. It also draws from interviews with 54 infertility patients recruited from the forum. Our aim was to examine how social support operates within this virtual realm, by examining how the forum's language, norms, and values create and enforce categories of deserving and belonging among site users. We find that the forum's discourse privileges an infertility narrative we term the "persistent patient," in which a patient exhaustively researches treatment options, undergoes multiple cycles of treatment despite repeated failures, and ultimately achieves success (a healthy baby). Meanwhile, there is little to no discursive space for discussion of the financial and social resources necessary to act in accordance with this script. Thus, women without such resources can be alienated, silenced, and denied mental health support by this online community. |
Mendeley readers
The data shown below were compiled from readership statistics for 86 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 86 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 14 | 16% |
| Student > Master | 13 | 15% |
| Student > Doctoral Student | 9 | 10% |
| Student > Bachelor | 7 | 8% |
| Researcher | 6 | 7% |
| Other | 9 | 10% |
| Unknown | 28 | 33% |
| Readers by discipline | Count | As % |
|---|---|---|
| Social Sciences | 16 | 19% |
| Psychology | 12 | 14% |
| Nursing and Health Professions | 6 | 7% |
| Business, Management and Accounting | 4 | 5% |
| Arts and Humanities | 4 | 5% |
| Other | 16 | 19% |
| Unknown | 28 | 33% |
Attention Score in Context
This research output has an Altmetric Attention Score of 12. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 May 2021.
All research outputs
#2,639,847
of 23,906,448 outputs
Outputs from Culture, Medicine, and Psychiatry
#161
of 622 outputs
Outputs of similar age
#54,367
of 426,319 outputs
Outputs of similar age from Culture, Medicine, and Psychiatry
#6
of 11 outputs
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