Title |
Attendance at Fragile X Specialty Clinics: Facilitators and Barriers
|
---|---|
Published in |
American Journal on Intellectual & Developmental Disabilities, November 2017
|
DOI | 10.1352/1944-7558-122.6.457 |
Pubmed ID | |
Authors |
Sharon A Kidd, Melissa Raspa, Renée Clark, Holly Usrey-Roos, Anne C Wheeler, Jessica A Liu, Amanda Wylie, Stephanie L Sherman |
Abstract |
The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or younger, and white, non-Hispanic. Using logistic regression models, awareness about FX Clinic services, guardian education, and income (CSN), and child age, family income, and total number of co-occurring conditions (OFXW) were predictors of clinic attendance. Demographic and child characteristics accounted for a large portion of the explained variance. Importantly, symptom severity and parent knowledge about services were independent predictors beyond the demographic characteristics of families. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 35 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Doctoral Student | 7 | 20% |
Student > Master | 6 | 17% |
Researcher | 5 | 14% |
Student > Ph. D. Student | 2 | 6% |
Student > Bachelor | 2 | 6% |
Other | 2 | 6% |
Unknown | 11 | 31% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 8 | 23% |
Nursing and Health Professions | 4 | 11% |
Medicine and Dentistry | 4 | 11% |
Social Sciences | 3 | 9% |
Agricultural and Biological Sciences | 2 | 6% |
Other | 1 | 3% |
Unknown | 13 | 37% |