| Title |
How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing?
|
|---|---|
| Published in |
Journal of Genetic Counseling, December 2014
|
| DOI | 10.1007/s10897-014-9804-6 |
| Pubmed ID | |
| Authors |
Cynthia M. Khan, Christine Rini, Barbara A. Bernhardt, J. Scott Roberts, Kurt D. Christensen, James P. Evans, Kyle B. Brothers, Myra I. Roche, Jonathan S. Berg, Gail E. Henderson |
| Abstract |
Next generation genomic sequencing technologies (including whole genome or whole exome sequencing) are being increasingly applied to clinical care. Yet, the breadth and complexity of sequencing information raise questions about how best to communicate and return sequencing information to patients and families in ways that facilitate comprehension and optimal health decisions. Obtaining answers to such questions will require multidisciplinary research. In this paper, we focus on how psychological science research can address questions related to clinical genomic sequencing by explaining emotional, cognitive, and behavioral processes in response to different types of genomic sequencing information (e.g., diagnostic results and incidental findings). We highlight examples of psychological science that can be applied to genetic counseling research to inform the following questions: (1) What factors influence patients' and providers' informational needs for developing an accurate understanding of what genomic sequencing results do and do not mean?; (2) How and by whom should genomic sequencing results be communicated to patients and their family members?; and (3) How do patients and their families respond to uncertainties related to genomic information? |
X Demographics
The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | 25% |
| United States | 1 | 25% |
| Unknown | 2 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 3 | 75% |
| Scientists | 1 | 25% |
Mendeley readers
The data shown below were compiled from readership statistics for 95 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Canada | 2 | 2% |
| South Africa | 1 | 1% |
| Unknown | 92 | 97% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Researcher | 18 | 19% |
| Student > Ph. D. Student | 15 | 16% |
| Student > Master | 15 | 16% |
| Student > Bachelor | 10 | 11% |
| Other | 7 | 7% |
| Other | 19 | 20% |
| Unknown | 11 | 12% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 20 | 21% |
| Medicine and Dentistry | 18 | 19% |
| Biochemistry, Genetics and Molecular Biology | 13 | 14% |
| Agricultural and Biological Sciences | 10 | 11% |
| Social Sciences | 8 | 8% |
| Other | 11 | 12% |
| Unknown | 15 | 16% |
Attention Score in Context
This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 15 July 2015.
All research outputs
#12,908,293
of 22,774,233 outputs
Outputs from Journal of Genetic Counseling
#563
of 1,142 outputs
Outputs of similar age
#169,312
of 361,040 outputs
Outputs of similar age from Journal of Genetic Counseling
#13
of 27 outputs
Altmetric has tracked 22,774,233 research outputs across all sources so far. This one is in the 42nd percentile – i.e., 42% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,142 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.9. This one is in the 49th percentile – i.e., 49% of its peers scored the same or lower than it.
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We're also able to compare this research output to 27 others from the same source and published within six weeks on either side of this one. This one is in the 48th percentile – i.e., 48% of its contemporaries scored the same or lower than it.