| Title |
An interactive portal to empower cancer survivors: a qualitative study on user expectations
|
|---|---|
| Published in |
Supportive Care in Cancer, January 2015
|
| DOI | 10.1007/s00520-015-2605-0 |
| Pubmed ID | |
| Authors |
Wilma Kuijpers, Wim G. Groen, Romy Loos, Hester S. A. Oldenburg, Michel W. J. M. Wouters, Neil K. Aaronson, Wim H. van Harten |
| Abstract |
Portals are increasingly used to improve patient empowerment, but are still uncommon in oncology. In this study, we explored cancer survivors' and health professionals' expectations of possible features of an interactive portal. We conducted three focus groups with breast cancer survivors (n = 21), two with lung cancer survivors (n = 14), and four with health professionals (n = 31). Drafts of possible features of an interactive portal were presented as static screenshots: survivorship care plan (SCP), access to electronic medical record (EMR), appointments, e-consultation, online patient community, patient reported outcomes (PROs) plus feedback, telemonitoring service, online rehabilitation program, and online psychosocial self-management program. This presentation was followed by an open discussion. Focus groups were audiotaped, transcribed verbatim, and data were analyzed using content analysis. Important themes included fulfillment of information needs, communication, motivation, quality of feedback, and supervision. Cancer survivors were primarily interested in features that could fulfill their information needs: SCP, access to their EMR, and an overview of appointments. Health professionals considered PROs and telemonitoring as most useful features, as these provide relevant information about survivors' health status. We recommend to minimally include these features in an interactive portal for cancer survivors. This is the first study that evaluated the expectations of cancer survivors and health professionals concerning an interactive portal. Both groups were positive about the introduction of such a portal, although their preferences for the various features differed. These findings reflect their unique perspective and emphasize the importance of involving multiple stakeholders in the actual design process. |
X Demographics
The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Netherlands | 2 | 50% |
| Unknown | 2 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 50% |
| Practitioners (doctors, other healthcare professionals) | 1 | 25% |
| Scientists | 1 | 25% |
Mendeley readers
The data shown below were compiled from readership statistics for 189 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | <1% |
| United States | 1 | <1% |
| Brazil | 1 | <1% |
| Unknown | 186 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 34 | 18% |
| Student > Master | 33 | 17% |
| Researcher | 22 | 12% |
| Student > Bachelor | 16 | 8% |
| Student > Doctoral Student | 15 | 8% |
| Other | 37 | 20% |
| Unknown | 32 | 17% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 37 | 20% |
| Medicine and Dentistry | 36 | 19% |
| Social Sciences | 15 | 8% |
| Psychology | 15 | 8% |
| Computer Science | 12 | 6% |
| Other | 32 | 17% |
| Unknown | 42 | 22% |
Attention Score in Context
This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 16 April 2015.
All research outputs
#13,927,627
of 22,780,165 outputs
Outputs from Supportive Care in Cancer
#2,678
of 4,574 outputs
Outputs of similar age
#182,106
of 352,883 outputs
Outputs of similar age from Supportive Care in Cancer
#44
of 94 outputs
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We're also able to compare this research output to 94 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 50% of its contemporaries.