Title |
Quality of life in young people with cystic fibrosis: effects of hospitalization, age and gender, and differences in parent/child perceptions
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Published in |
Ambulatory Child Health, October 2008
|
DOI | 10.1111/j.1365-2214.2008.00900.x |
Pubmed ID | |
Authors |
M. Hegarty, J. MacDonald, P. Watter, C. Wilson |
Abstract |
The Cystic Fibrosis Questionnaire-Revised version (CFQ-R) was used to evaluate age/gender effects on quality of life (QOL) in Australian young people with cystic fibrosis (CF) who were inpatients/outpatients aged 6-18 years. Parent/child agreement was also examined. The CFQ-R was completed by 18 outpatients, and 15 inpatients at admission for an acute pulmonary exacerbation to a tertiary hospital, Brisbane, Australia, as well as by parents of those aged 6-13 years. Inpatients scored significantly lower than outpatients for the CFQ-R domains 'emotional state', 'social', 'body image' and 'respiratory symptoms'. Young people aged 6-13 years scored significantly better than those aged 14-18 years for 'emotional state', 'body image' and 'treatment burden'. Women perceived less 'treatment burden' than did men. Young people aged 6-13 years perceived less 'treatment burden' than did their parents. A significant interaction occurred between child/parent report and gender for 'emotional state' and 'eating disturbances'. The CFQ-R found differences between inpatients and outpatients and between younger and older paediatric patients with CF, and between parent and child perceptions of QOL. |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 1% |
Unknown | 92 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 22 | 24% |
Student > Ph. D. Student | 12 | 13% |
Student > Bachelor | 11 | 12% |
Researcher | 10 | 11% |
Student > Doctoral Student | 7 | 8% |
Other | 13 | 14% |
Unknown | 18 | 19% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 28 | 30% |
Medicine and Dentistry | 23 | 25% |
Nursing and Health Professions | 8 | 9% |
Biochemistry, Genetics and Molecular Biology | 4 | 4% |
Social Sciences | 4 | 4% |
Other | 9 | 10% |
Unknown | 17 | 18% |