Title |
From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access
|
---|---|
Published in |
Journal of Autism and Developmental Disorders, February 2018
|
DOI | 10.1007/s10803-018-3473-5 |
Pubmed ID | |
Authors |
Amelia G. Edwards, Chris M. Brebner, Paul F. McCormack, Colin J. MacDougall |
Abstract |
Parents of children with Autism Spectrum Disorder are responsible for deciding which interventions to implement with their child. There is limited research examining parental decision-making with regards to intervention approaches. A constructivist grounded theory methodology was implemented in this study. Semi-structured interviews were undertaken with 14 participants from 12 family units. Data collection and analysis occurred concurrently, allowing a grounded theory to be constructed. Parental decision-making was influenced by many factors, arranged into seven core categories (values, experience, information, motivation, understanding, needs and logistics). Decision-making evolved over time, as parents transformed from 'parent' to 'expert'. The results of this study provide an insight into parental decision-making, which has implications for the support provided to parents by health professionals. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 2 | 50% |
Australia | 1 | 25% |
Unknown | 1 | 25% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 4 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 127 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 17 | 13% |
Researcher | 17 | 13% |
Student > Ph. D. Student | 14 | 11% |
Student > Bachelor | 12 | 9% |
Student > Doctoral Student | 8 | 6% |
Other | 19 | 15% |
Unknown | 40 | 31% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 32 | 25% |
Nursing and Health Professions | 13 | 10% |
Medicine and Dentistry | 9 | 7% |
Social Sciences | 9 | 7% |
Engineering | 3 | 2% |
Other | 10 | 8% |
Unknown | 51 | 40% |