Title |
‘Recovery’ in the Real World: Service User Experiences of Mental Health Service Use and Recommendations for Change 20 Years on from a First Episode Psychosis
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Published in |
Administration and Policy in Mental Health and Mental Health Services Research, February 2018
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DOI | 10.1007/s10488-018-0851-4 |
Pubmed ID | |
Authors |
Donal O’Keeffe, Ann Sheridan, Aine Kelly, Roisin Doyle, Kevin Madigan, Elizabeth Lawlor, Mary Clarke |
Abstract |
Little is known about how recovery oriented policy and legislative changes influence service users' perceptions of mental health care over time. Although the recovery approach is endorsed in many countries, qualitative research examining its impact on service use experiences has been lacking. This study aimed to explore this impact as well as experiences of service utilisation and suggestions for change with people diagnosed with a First Episode Psychosis between 1995 and 1999. Participants had used services during the 10 year period prior to, and 10 years post, policy and legislative shifts to the recovery approach. Semi-structured interviews were conducted with 10 participants who met criteria for 'full functional recovery' and 10 who did not. Data were analysed using Thematic Networks Analysis to develop Basic, Organising, and Global Themes. Over time, recovered participants perceived an improvement in service quality through the 'humanising' of treatment and non-recovered participants experienced their responsibility in recovery being recognised, but felt abandoned to the recovery approach. Findings suggest the importance of viewing service users as demonstrating personhood and having societal value; examining the personal meaning of psychotic experiences; and matching expectations with what services can feasibly provide. The implementation and the principal tenets of the recovery approach warrant further investigation. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 26 | 36% |
Australia | 4 | 5% |
United States | 4 | 5% |
Ireland | 3 | 4% |
Canada | 2 | 3% |
Bosnia and Herzegovina | 1 | 1% |
New Zealand | 1 | 1% |
South Africa | 1 | 1% |
Unknown | 31 | 42% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 52 | 71% |
Scientists | 11 | 15% |
Practitioners (doctors, other healthcare professionals) | 9 | 12% |
Science communicators (journalists, bloggers, editors) | 1 | 1% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 143 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 26 | 18% |
Student > Ph. D. Student | 17 | 12% |
Student > Doctoral Student | 9 | 6% |
Student > Postgraduate | 8 | 6% |
Student > Bachelor | 8 | 6% |
Other | 26 | 18% |
Unknown | 49 | 34% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 27 | 19% |
Nursing and Health Professions | 17 | 12% |
Social Sciences | 11 | 8% |
Medicine and Dentistry | 10 | 7% |
Computer Science | 5 | 3% |
Other | 21 | 15% |
Unknown | 52 | 36% |