| Title |
Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments
|
|---|---|
| Published in |
Quality of Life Research, February 2018
|
| DOI | 10.1007/s11136-018-1809-4 |
| Pubmed ID | |
| Authors |
Janneke van Roij, Heidi Fransen, Lonneke van de Poll-Franse, Myrte Zijlstra, Natasja Raijmakers |
| Abstract |
Patient-reported outcome measures (PROMs) are becoming increasingly important in clinical practice. The implementation of PROMS in routine practice is challenging because information regarding psychometric quality of measurement instruments is fragmented and standardization is lacking. The aim of this study is to evaluate the quality of self-administered HRQoL measurement instruments for use in patients with advanced cancer in clinical practice. A systematic literature search was performed in PubMed, Embase, PsycINFO, and CINAHL to identify studies concerning self-administered HRQoL measurement instruments in patients with advanced cancer between January 1990 and September 2016. Quality of the measurement instruments was assessed by predefined criteria derived from the COSMIN checklist. Sixty-nine articles relating to 39 measurement instruments met the inclusion criteria. Information regarding important measurement properties was often incomplete. None of the instruments performed sufficient on all measurement properties. Considering available information, the EORTC QLQ-C15-PAL appeared to have adequate psychometric properties, together with the EORTC QLQ-BM22. Many of the existing HRQoL measurement instruments have not yet been evaluated in an adequate manner. Validation of self-administered HRQoL measurement instruments is an ongoing development and should be prioritized. This review contributes to improved clarity regarding the availability and quality of HRQoL measurement instruments for patients with advanced cancer and supports health care professionals in an adequate selection of suitable PROMs in clinical practice. |
X Demographics
The data shown below were collected from the profiles of 15 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 5 | 33% |
| United States | 3 | 20% |
| Australia | 2 | 13% |
| Canada | 1 | 7% |
| Pakistan | 1 | 7% |
| Unknown | 3 | 20% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 13 | 87% |
| Science communicators (journalists, bloggers, editors) | 1 | 7% |
| Scientists | 1 | 7% |
Mendeley readers
The data shown below were compiled from readership statistics for 109 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 109 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 20 | 18% |
| Student > Bachelor | 17 | 16% |
| Student > Doctoral Student | 9 | 8% |
| Student > Ph. D. Student | 8 | 7% |
| Researcher | 7 | 6% |
| Other | 14 | 13% |
| Unknown | 34 | 31% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 26 | 24% |
| Medicine and Dentistry | 24 | 22% |
| Pharmacology, Toxicology and Pharmaceutical Science | 5 | 5% |
| Psychology | 5 | 5% |
| Agricultural and Biological Sciences | 4 | 4% |
| Other | 8 | 7% |
| Unknown | 37 | 34% |
Attention Score in Context
This research output has an Altmetric Attention Score of 8. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 September 2019.
All research outputs
#4,109,166
of 23,023,224 outputs
Outputs from Quality of Life Research
#379
of 2,916 outputs
Outputs of similar age
#94,071
of 444,265 outputs
Outputs of similar age from Quality of Life Research
#16
of 71 outputs
Altmetric has tracked 23,023,224 research outputs across all sources so far. Compared to these this one has done well and is in the 82nd percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,916 research outputs from this source. They receive a mean Attention Score of 4.6. This one has done well, scoring higher than 86% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 444,265 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 78% of its contemporaries.
We're also able to compare this research output to 71 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 77% of its contemporaries.