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Understanding mothers’ decision‐making needs for autopsy consent after stillbirth: Framework analysis of a large survey

Overview of attention for article published in Birth: Issues in Perinatal Care, March 2018
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  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (91st percentile)
  • Good Attention Score compared to outputs of the same age and source (68th percentile)

Mentioned by

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43 X users

Citations

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8 Dimensions

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38 Mendeley
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Title
Understanding mothers’ decision‐making needs for autopsy consent after stillbirth: Framework analysis of a large survey
Published in
Birth: Issues in Perinatal Care, March 2018
DOI 10.1111/birt.12344
Pubmed ID
Authors

Anne Schirmann, Frances M. Boyle, Dell Horey, Dimitrios Siassakos, David Ellwood, Ingrid Rowlands, Vicki Flenady

Abstract

Experiencing stillbirth is devastating and leaves parents searching for causes. Autopsy is the gold standard for investigation, but deciding to consent to this procedure is very difficult for parents. Decision support in the form of clear, consistent, and parent-centered information is likely to be helpful. The aims of this study were to understand the influences on parents' decisions about autopsy after stillbirth and to identify attributes of effective decision support that align with parents' needs. Framework analysis using the Decision Drivers Model was used to analyze responses from 460 Australian and New Zealand (ANZ) mothers who took part in a multi-country online survey of parents' experiences of stillbirth. The main outcomes examined were factors influencing mothers' decisions to consent to autopsy after stillbirth. Free-text responses from 454 ANZ mothers referenced autopsy, yielding 1221 data segments for analysis. The data confirmed the difficult decision autopsy consent entails. Mothers had a strong need for answers coupled with a strong need to protect their baby. Four "decision drivers" were confirmed: preparedness for the decision; parental responsibility; possible consequences; and role of health professionals. Each had the capacity to influence decisions for or against autopsy. Also prominent were the "aftermath" of the decision: receiving the results; and decisional regret or uncertainty. The influences on decisions about autopsy are diverse and unpredictable. Effective decision support requires a consistent and structured approach that is built on understanding of parents' needs.

X Demographics

X Demographics

The data shown below were collected from the profiles of 43 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 38 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 38 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 5 13%
Student > Master 4 11%
Professor 2 5%
Researcher 2 5%
Student > Ph. D. Student 2 5%
Other 4 11%
Unknown 19 50%
Readers by discipline Count As %
Nursing and Health Professions 7 18%
Medicine and Dentistry 4 11%
Engineering 2 5%
Sports and Recreations 1 3%
Immunology and Microbiology 1 3%
Other 2 5%
Unknown 21 55%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 30. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 08 March 2019.
All research outputs
#1,329,609
of 25,658,541 outputs
Outputs from Birth: Issues in Perinatal Care
#116
of 1,084 outputs
Outputs of similar age
#29,113
of 346,974 outputs
Outputs of similar age from Birth: Issues in Perinatal Care
#5
of 16 outputs
Altmetric has tracked 25,658,541 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 94th percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,084 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 16.5. This one has done well, scoring higher than 89% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 346,974 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 91% of its contemporaries.
We're also able to compare this research output to 16 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 68% of its contemporaries.