| Title |
Implementation of a multidisciplinary psychoeducational intervention for Parkinson’s disease patients and carers in the community: study protocol
|
|---|---|
| Published in |
BMC Primary Care, April 2018
|
| DOI | 10.1186/s12875-018-0730-9 |
| Pubmed ID | |
| Authors |
M. V. Navarta-Sánchez, M. E. Ursua, M. Riverol Fernández, L. Ambrosio, M. Medina, S. Díaz de Cerio, M. J. Álvarez, J. M. Senosiain, A. Gorraiz, N. Caparrós, S. Anaut, R. Martín-Lanas, M. Recio, M. C. Portillo |
| Abstract |
Parkinson's disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson's disease and the quality of life in patients and family carers in a Primary Care setting. This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson's disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions. NCT03129425 (ClinicalTrials.gov). Retrospectively registered on April 26, 2017. |
X Demographics
The data shown below were collected from the profiles of 11 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 2 | 18% |
| United States | 2 | 18% |
| Ireland | 1 | 9% |
| Unknown | 6 | 55% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 6 | 55% |
| Practitioners (doctors, other healthcare professionals) | 4 | 36% |
| Scientists | 1 | 9% |
Mendeley readers
The data shown below were compiled from readership statistics for 103 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 103 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Doctoral Student | 15 | 15% |
| Student > Bachelor | 13 | 13% |
| Student > Master | 8 | 8% |
| Researcher | 6 | 6% |
| Professor | 5 | 5% |
| Other | 19 | 18% |
| Unknown | 37 | 36% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 21 | 20% |
| Psychology | 13 | 13% |
| Medicine and Dentistry | 8 | 8% |
| Neuroscience | 5 | 5% |
| Sports and Recreations | 3 | 3% |
| Other | 12 | 12% |
| Unknown | 41 | 40% |
Attention Score in Context
This research output has an Altmetric Attention Score of 7. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 23 June 2018.
All research outputs
#5,207,253
of 25,382,440 outputs
Outputs from BMC Primary Care
#720
of 2,359 outputs
Outputs of similar age
#94,027
of 343,387 outputs
Outputs of similar age from BMC Primary Care
#11
of 35 outputs
Altmetric has tracked 25,382,440 research outputs across all sources so far. Compared to these this one has done well and is in the 79th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,359 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.7. This one has gotten more attention than average, scoring higher than 69% of its peers.
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We're also able to compare this research output to 35 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 68% of its contemporaries.