| Title |
Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual Disability
|
|---|---|
| Published in |
Journal of Autism and Developmental Disorders, November 2017
|
| DOI | 10.1007/s10803-017-3420-x |
| Pubmed ID | |
| Authors |
Yuka Mori, Jenny Downs, Kingsley Wong, Jane Heyworth, Helen Leonard |
| Abstract |
Using the Short Form 12 Health Survey this cross-sectional study examined parental well-being in caregivers of children with one of three genetic disorders associated with intellectual disability; Down syndrome, Rett syndrome and the CDKL5 disorder. Data were sourced from the Western Australian Down Syndrome (n = 291), Australian Rett Syndrome (n = 187) and International CDKL5 Disorder (n = 168) Databases. Among 596 mothers (median age, years 43.7; 24.6-72.2), emotional well-being was poorer than general female populations across age groups. Multivariate linear regression identified the poorest well-being in parents of children with the CDKL5 disorder, a rare but severe and complex encephalopathy, and negative associations with increased clinical severity irrespective of diagnosis. These findings are important for those providing healthcare and social services for these populations. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Australia | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Scientists | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 141 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 141 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 18 | 13% |
| Student > Doctoral Student | 18 | 13% |
| Student > Bachelor | 15 | 11% |
| Student > Ph. D. Student | 14 | 10% |
| Unspecified | 12 | 9% |
| Other | 24 | 17% |
| Unknown | 40 | 28% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 23 | 16% |
| Nursing and Health Professions | 18 | 13% |
| Unspecified | 12 | 9% |
| Medicine and Dentistry | 11 | 8% |
| Social Sciences | 9 | 6% |
| Other | 18 | 13% |
| Unknown | 50 | 35% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 April 2018.
All research outputs
#19,400,321
of 23,867,274 outputs
Outputs from Journal of Autism and Developmental Disorders
#4,464
of 5,240 outputs
Outputs of similar age
#333,777
of 444,039 outputs
Outputs of similar age from Journal of Autism and Developmental Disorders
#102
of 119 outputs
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