| Title |
The Castilian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
|
|---|---|
| Published in |
Rheumatology International, April 2018
|
| DOI | 10.1007/s00296-018-3976-6 |
| Pubmed ID | |
| Authors |
Jaime de Inocencio, Jordi Anton, Inmaculada Calvo Penades, Pablo Mesa del Castillo Bermejo, Rosa Alcobendas, Alina Lucica Boteanu, Rosa Bou, Estibaliz Iglesias, María Isabel González Fernandez, Berta López Montesinos, Palmira Santin, Paula Alcañiz Rodriguez, Maria Jose Lorente Sanchez, Alessandro Consolaro, Francesca Bovis, Nicolino Ruperto, For the Paediatric Rheumatology International Trials Organisation (PRINTO) |
| Abstract |
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Castilian Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 526 JIA patients (8.6% systemic, 49.4% oligoarticular, 18.2% RF negative polyarthritis, 23.8% other categories) and 78 healthy children, were enrolled in six centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Castilian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practise and clinical research. |
X Demographics
The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 2 | 67% |
| Unknown | 1 | 33% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 67% |
| Practitioners (doctors, other healthcare professionals) | 1 | 33% |
Mendeley readers
The data shown below were compiled from readership statistics for 40 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 40 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Researcher | 7 | 18% |
| Other | 5 | 13% |
| Student > Bachelor | 5 | 13% |
| Student > Master | 4 | 10% |
| Student > Ph. D. Student | 3 | 8% |
| Other | 4 | 10% |
| Unknown | 12 | 30% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 16 | 40% |
| Nursing and Health Professions | 7 | 18% |
| Psychology | 2 | 5% |
| Sports and Recreations | 1 | 3% |
| Biochemistry, Genetics and Molecular Biology | 1 | 3% |
| Other | 0 | 0% |
| Unknown | 13 | 33% |
Attention Score in Context
This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 29 September 2018.
All research outputs
#13,238,691
of 23,043,346 outputs
Outputs from Rheumatology International
#1,234
of 2,206 outputs
Outputs of similar age
#162,689
of 328,950 outputs
Outputs of similar age from Rheumatology International
#20
of 40 outputs
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