Title |
The impact of disease duration on quality of life in children with nephrotic syndrome: a Midwest Pediatric Nephrology Consortium study
|
---|---|
Published in |
Pediatric Nephrology, March 2015
|
DOI | 10.1007/s00467-015-3074-x |
Pubmed ID | |
Authors |
David T. Selewski, Jonathan P. Troost, Susan F. Massengill, Rasheed A. Gbadegesin, Larry A. Greenbaum, Ibrahim F. Shatat, Yi Cai, Gaurav Kapur, Diane Hebert, Michael J. Somers, Howard Trachtman, Priya Pais, Michael E. Seifert, Jens Goebel, Christine B. Sethna, John D. Mahan, Heather E. Gross, Emily Herreshoff, Yang Liu, Peter X. Song, Bryce B. Reeve, Darren A. DeWalt, Debbie S. Gipson |
Abstract |
The Patient Reported Outcomes Measurement Information System (PROMIS) II is a prospective study that evaluates patient reported outcomes in pediatric chronic diseases as a measure of health-related quality of life (HRQOL). We have evaluated the influence of disease duration on HRQOL and, for the first time, compared the findings of the PROMIS measures to those of the PedsQL™ 4.0 Generic Scales (PedsQL) from the PROMIS II nephrotic syndrome (NS) longitudinal cohort. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 50% |
Unknown | 1 | 50% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 2 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Japan | 1 | 1% |
Unknown | 86 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 14 | 16% |
Researcher | 12 | 14% |
Student > Postgraduate | 10 | 11% |
Other | 7 | 8% |
Student > Ph. D. Student | 7 | 8% |
Other | 16 | 18% |
Unknown | 21 | 24% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 37 | 43% |
Nursing and Health Professions | 8 | 9% |
Psychology | 5 | 6% |
Agricultural and Biological Sciences | 3 | 3% |
Social Sciences | 3 | 3% |
Other | 9 | 10% |
Unknown | 22 | 25% |