Title |
Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities
|
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Published in |
International Journal of Mental Health and Addiction, April 2018
|
DOI | 10.1007/s11469-018-9904-x |
Pubmed ID | |
Authors |
Nazilla Khanlou, Anne Mantini, Attia Khan, Katie Degendorfer, Masood Zangeneh |
Abstract |
Protection of privacy of information for young adults with developmental disabilities and their families is essential to promote quality of life, well-being, empowerment, and inclusion. Despite this, the young adults' information privacy rights are increasingly at risk. This paper provides a scoping review, applying Arksey and O'Malley's (2005) approach, of all published peer-reviewed journal articles and gray literature to examine the barriers and facilitators in utilization of legislation that protects the collection, use, disclosure, and access of personal information in Canada. The scoping review process was further expanded with a rigorous reliability method and applied a socio-ecological framework to the final 47 studies. National and international policy and legislation (macro level), organization-based factors (meso), young adults and community interactions (exo), and individual disability related factors (micro) are examined. The review identifies the barriers and highlights the importance of facilitators for acting on personal privacy rights. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 6 | 75% |
United States | 1 | 13% |
Unknown | 1 | 13% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 6 | 75% |
Scientists | 2 | 25% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 38 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 7 | 18% |
Student > Doctoral Student | 5 | 13% |
Researcher | 5 | 13% |
Lecturer | 3 | 8% |
Student > Ph. D. Student | 3 | 8% |
Other | 3 | 8% |
Unknown | 12 | 32% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 8 | 21% |
Nursing and Health Professions | 7 | 18% |
Computer Science | 3 | 8% |
Medicine and Dentistry | 3 | 8% |
Social Sciences | 2 | 5% |
Other | 1 | 3% |
Unknown | 14 | 37% |