| Title |
Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome
|
|---|---|
| Published in |
Journal of Autism and Developmental Disorders, April 2015
|
| DOI | 10.1007/s10803-015-2457-y |
| Pubmed ID | |
| Authors |
Rina Cianfaglione, Richard P. Hastings, David Felce, Angus Clarke, Michael P. Kerr |
| Abstract |
Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters' behavioral phenotype, current health, and behavior problems, and their own and a sibling's well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters' RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters' current health problems predicted more maternal perceptions of positive gain. |
X Demographics
The data shown below were collected from the profiles of 5 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 3 | 60% |
| Unknown | 2 | 40% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 4 | 80% |
| Scientists | 1 | 20% |
Mendeley readers
The data shown below were compiled from readership statistics for 126 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 126 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 20 | 16% |
| Student > Master | 19 | 15% |
| Researcher | 18 | 14% |
| Student > Doctoral Student | 17 | 13% |
| Student > Bachelor | 9 | 7% |
| Other | 13 | 10% |
| Unknown | 30 | 24% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 48 | 38% |
| Medicine and Dentistry | 13 | 10% |
| Social Sciences | 12 | 10% |
| Nursing and Health Professions | 7 | 6% |
| Arts and Humanities | 3 | 2% |
| Other | 6 | 5% |
| Unknown | 37 | 29% |
Attention Score in Context
This research output has an Altmetric Attention Score of 4. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 May 2015.
All research outputs
#8,031,057
of 24,403,034 outputs
Outputs from Journal of Autism and Developmental Disorders
#2,877
of 5,341 outputs
Outputs of similar age
#92,546
of 269,388 outputs
Outputs of similar age from Journal of Autism and Developmental Disorders
#49
of 66 outputs
Altmetric has tracked 24,403,034 research outputs across all sources so far. This one has received more attention than most of these and is in the 66th percentile.
So far Altmetric has tracked 5,341 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 13.2. This one is in the 45th percentile – i.e., 45% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 269,388 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 65% of its contemporaries.
We're also able to compare this research output to 66 others from the same source and published within six weeks on either side of this one. This one is in the 27th percentile – i.e., 27% of its contemporaries scored the same or lower than it.