| Title |
Satisfaction with information and unmet information needs in men and women with cancer
|
|---|---|
| Published in |
Journal of Cancer Survivorship, May 2015
|
| DOI | 10.1007/s11764-015-0451-1 |
| Pubmed ID | |
| Authors |
Hermann Faller, Uwe Koch, Elmar Brähler, Martin Härter, Monika Keller, Holger Schulz, Karl Wegscheider, Joachim Weis, Anna Boehncke, Bianca Hund, Katrin Reuter, Matthias Richard, Susanne Sehner, Carina Szalai, Hans-Ulrich Wittchen, Anja Mehnert |
| Abstract |
Information needs in cancer patients are high but often not fulfilled. This study aimed to examine the level of perceived information, information satisfaction, and unmet needs in a large sample of cancer patients. Further, we explored associations with emotional distress and quality of life accounting for gender. In a multicenter, cross-sectional study in Germany, 4020 cancer patients (mean age 58 years, 51 % women) were evaluated. We obtained self-reports of information level, information satisfaction, and unmet needs, measured depressive symptoms with the Patient Health Questionnaire (PHQ-9), symptoms of anxiety with the Generalized Anxiety Disorder Scale (GAD-7), and health-related quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30). Seventy-two to 88 % of participants reported to be well informed regarding various aspects of their disease, except of psychological support (38 %). However, unmet information needs were also prevalent in 36 to 48 %. Gender differences found were generally small. Although men felt less informed about psychological support, they expressed fewer needs for further information regarding this topic. Irrespective of gender, patients who were less satisfied with information received and had more unmet needs reported more anxiety, depression, and lower quality of life. Up to three quarters of those classified as most severely distressed reported unmet needs for information about psychological support. In this largest study to date, we found high levels of both information received and satisfaction with information, but also considerable amounts of unmet needs, particularly regarding psychological support. Provision of information about psychosocial support seems important to increase utilization of support offers among distressed cancer survivors. |
X Demographics
The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Brazil | 1 | 33% |
| Unknown | 2 | 67% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Scientists | 2 | 67% |
| Members of the public | 1 | 33% |
Mendeley readers
The data shown below were compiled from readership statistics for 180 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Brazil | 1 | <1% |
| Unknown | 179 | 99% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 29 | 16% |
| Researcher | 22 | 12% |
| Student > Ph. D. Student | 19 | 11% |
| Student > Bachelor | 15 | 8% |
| Student > Doctoral Student | 13 | 7% |
| Other | 32 | 18% |
| Unknown | 50 | 28% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 33 | 18% |
| Medicine and Dentistry | 30 | 17% |
| Psychology | 17 | 9% |
| Social Sciences | 10 | 6% |
| Pharmacology, Toxicology and Pharmaceutical Science | 6 | 3% |
| Other | 27 | 15% |
| Unknown | 57 | 32% |
Attention Score in Context
This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 August 2015.
All research outputs
#14,459,237
of 23,613,071 outputs
Outputs from Journal of Cancer Survivorship
#716
of 1,028 outputs
Outputs of similar age
#135,783
of 264,843 outputs
Outputs of similar age from Journal of Cancer Survivorship
#14
of 22 outputs
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