| Title |
An End-User Participatory Approach to Collaboratively Refine HIV Care Data, The New York State Experience
|
|---|---|
| Published in |
AIDS and Behavior, April 2018
|
| DOI | 10.1007/s10461-018-2104-7 |
| Pubmed ID | |
| Authors |
Carol-Ann Swain, Steven Sawicki, Diane Addison, Benjamin Katz, Kelly Piersanti, Abigail Baim-Lance, Daniel Gordon, Bridget J. Anderson, Denis Nash, Clemens Steinbock, Bruce Agins |
| Abstract |
Existing data dissemination structures primarily rely on top-down approaches. Unless designed with the end user in mind, this may impair data-driven clinical improvements to Human Immunodeficiency Virus (HIV) prevention and care. In this study, we implemented a data visualization activity to create region-specific data presentations collaboratively with HIV providers, consumers of HIV care, and New York State (NYS) Department of Health AIDS Institute staff for use in local HIV care decision-making. Data from the NYS HIV Surveillance Registry (2009-2013) and HIV care facilities (2010-2015) participating in a Health Resources and Services Administration (HRSA) Systems Linkages and Access to Care project were used. Each data package incorporated visuals for: linkage to HIV care, retention in care and HIV viral suppression. End-users were vocal about their data needs and their capacity to interpret public health data. This experience suggests that data dissemination strategies should incorporate input from the end user to improve comprehension and optimize HIV care. |
X Demographics
The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | 50% |
| United States | 1 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 30 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 30 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 4 | 13% |
| Student > Bachelor | 4 | 13% |
| Student > Ph. D. Student | 3 | 10% |
| Student > Doctoral Student | 1 | 3% |
| Lecturer | 1 | 3% |
| Other | 5 | 17% |
| Unknown | 12 | 40% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 4 | 13% |
| Social Sciences | 3 | 10% |
| Computer Science | 2 | 7% |
| Unspecified | 1 | 3% |
| Agricultural and Biological Sciences | 1 | 3% |
| Other | 6 | 20% |
| Unknown | 13 | 43% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 May 2018.
All research outputs
#19,024,440
of 24,228,883 outputs
Outputs from AIDS and Behavior
#2,882
of 3,613 outputs
Outputs of similar age
#243,967
of 332,389 outputs
Outputs of similar age from AIDS and Behavior
#69
of 95 outputs
Altmetric has tracked 24,228,883 research outputs across all sources so far. This one is in the 18th percentile – i.e., 18% of other outputs scored the same or lower than it.
So far Altmetric has tracked 3,613 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.0. This one is in the 15th percentile – i.e., 15% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 332,389 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 21st percentile – i.e., 21% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 95 others from the same source and published within six weeks on either side of this one. This one is in the 22nd percentile – i.e., 22% of its contemporaries scored the same or lower than it.