| Title |
Users’ motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories
|
|---|---|
| Published in |
Journal of Community Genetics, May 2011
|
| DOI | 10.1007/s12687-011-0048-y |
| Pubmed ID | |
| Authors |
Yeyang Su, Heidi C. Howard, Pascal Borry |
| Abstract |
The relatively rapid growth of the direct-to-consumer (DTC) genetic testing market in the last few years has led to increasing attention from both the scientific community and policy makers. One voice often missing in these debates, however, is that of the actual user of these genetic testing services. In order to gain a better picture of the motivations and expectations that propel individuals to purchase DTC genome-wide testing, we conducted an exploratory study based on users' personal stories. Through qualitative content analysis of users' personal stories found on Internet blogs and DTC genetic testing companies' websites, we identified five major sets of motivations and expectations towards DTC genome-wide testing. These themes are related to (1) health, (2) curiosity and fascination, (3) genealogy, (4) contributing to research, and (5) recreation. Obtaining such information can help us to understand how users consider genome-wide testing and forms the basis for further research. |
X Demographics
The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 3 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 67% |
| Scientists | 1 | 33% |
Mendeley readers
The data shown below were compiled from readership statistics for 102 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 2 | 2% |
| Sweden | 1 | <1% |
| Denmark | 1 | <1% |
| Canada | 1 | <1% |
| Unknown | 97 | 95% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 25 | 25% |
| Researcher | 18 | 18% |
| Student > Ph. D. Student | 14 | 14% |
| Student > Bachelor | 9 | 9% |
| Other | 8 | 8% |
| Other | 16 | 16% |
| Unknown | 12 | 12% |
| Readers by discipline | Count | As % |
|---|---|---|
| Social Sciences | 18 | 18% |
| Agricultural and Biological Sciences | 15 | 15% |
| Biochemistry, Genetics and Molecular Biology | 11 | 11% |
| Medicine and Dentistry | 11 | 11% |
| Computer Science | 7 | 7% |
| Other | 19 | 19% |
| Unknown | 21 | 21% |
Attention Score in Context
This research output has an Altmetric Attention Score of 6. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 November 2022.
All research outputs
#5,716,551
of 23,025,074 outputs
Outputs from Journal of Community Genetics
#107
of 371 outputs
Outputs of similar age
#31,575
of 111,940 outputs
Outputs of similar age from Journal of Community Genetics
#1
of 4 outputs
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So far Altmetric has tracked 371 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has gotten more attention than average, scoring higher than 71% of its peers.
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We're also able to compare this research output to 4 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them