Title |
Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals
|
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Published in |
Journal of Autism and Developmental Disorders, June 2018
|
DOI | 10.1007/s10803-018-3639-1 |
Pubmed ID | |
Authors |
Laura Crane, Richard Batty, Hanna Adeyinka, Lorna Goddard, Lucy A. Henry, Elisabeth L. Hill |
Abstract |
Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 20 | 43% |
United States | 5 | 11% |
Canada | 2 | 4% |
France | 1 | 2% |
Brazil | 1 | 2% |
New Zealand | 1 | 2% |
Greece | 1 | 2% |
Unknown | 16 | 34% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 30 | 64% |
Scientists | 11 | 23% |
Science communicators (journalists, bloggers, editors) | 3 | 6% |
Practitioners (doctors, other healthcare professionals) | 3 | 6% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 359 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 53 | 15% |
Student > Bachelor | 47 | 13% |
Student > Ph. D. Student | 40 | 11% |
Student > Doctoral Student | 27 | 8% |
Researcher | 16 | 4% |
Other | 52 | 14% |
Unknown | 124 | 35% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 94 | 26% |
Nursing and Health Professions | 36 | 10% |
Social Sciences | 34 | 9% |
Medicine and Dentistry | 24 | 7% |
Unspecified | 8 | 2% |
Other | 26 | 7% |
Unknown | 137 | 38% |