| Title |
Executive function and quality of life in individuals with Marfan syndrome
|
|---|---|
| Published in |
Quality of Life Research, April 2018
|
| DOI | 10.1007/s11136-018-1859-7 |
| Pubmed ID | |
| Authors |
Ileana Ratiu, Thomas B. Virden, Hope Baylow, Melissa Flint, Mitra Esfandiarei |
| Abstract |
Marfan syndrome (MFS) is a connective tissue disorder that affects skeletal, ocular, pulmonary, cardiovascular, and central nervous systems. Psychological and physiologic symptoms may lead to diminished quality of life (QoL) in individuals with MFS compared with healthy individuals. Currently, there is little evidence regarding the impact of MFS on executive function and QoL. This study examined perceptions of executive function and QoL among persons with MFS. A total of 318 participants with MFS completed surveys assessing perceptions of executive function abilities and QoL. Responses to executive function questions were grouped using principle component analysis. Responses to QoL questions were separated into overall QoL, questions dealing with satisfaction of QoL, and importance placed on aspect of QoL. Principle component analysis revealed that executive function difficulties, particularly mental fatigue, associated with MFS symptoms affect QoL satisfaction and total QoL. Interestingly, medication status did not significantly impact QoL, over and above executive function difficulties. The findings of the current study suggest that individuals with MFS may experience specific executive function difficulties which impact QoL. These findings also have implications for clinicians who work with individuals with MFS. |
Mendeley readers
The data shown below were compiled from readership statistics for 58 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 58 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 11 | 19% |
| Student > Master | 7 | 12% |
| Student > Ph. D. Student | 6 | 10% |
| Student > Doctoral Student | 4 | 7% |
| Student > Postgraduate | 3 | 5% |
| Other | 7 | 12% |
| Unknown | 20 | 34% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 9 | 16% |
| Psychology | 6 | 10% |
| Medicine and Dentistry | 5 | 9% |
| Biochemistry, Genetics and Molecular Biology | 3 | 5% |
| Neuroscience | 3 | 5% |
| Other | 9 | 16% |
| Unknown | 23 | 40% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 13 July 2018.
All research outputs
#20,527,576
of 23,096,849 outputs
Outputs from Quality of Life Research
#2,659
of 2,922 outputs
Outputs of similar age
#288,486
of 327,397 outputs
Outputs of similar age from Quality of Life Research
#64
of 64 outputs
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We're also able to compare this research output to 64 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.