Title |
Brief Report: Recruitment and Retention of Minority Children for Autism Research
|
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Published in |
Journal of Autism and Developmental Disorders, September 2015
|
DOI | 10.1007/s10803-015-2603-6 |
Pubmed ID | |
Authors |
Irina Zamora, Marian E. Williams, Marcia Higareda, Barbara Y. Wheeler, Pat Levitt |
Abstract |
Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1-17, 2002; Kelly et al. in J Nat Med Assoc 97:777-783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5-17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 25% |
Unknown | 3 | 75% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 4 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 93 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 14 | 15% |
Student > Ph. D. Student | 12 | 13% |
Student > Master | 10 | 11% |
Student > Bachelor | 7 | 8% |
Student > Doctoral Student | 6 | 6% |
Other | 16 | 17% |
Unknown | 28 | 30% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 23 | 25% |
Social Sciences | 10 | 11% |
Nursing and Health Professions | 9 | 10% |
Medicine and Dentistry | 7 | 8% |
Neuroscience | 2 | 2% |
Other | 8 | 9% |
Unknown | 34 | 37% |