| Title |
Quality of life in persons with dementia using regional dementia care network services in Germany: a one-year follow-up study
|
|---|---|
| Published in |
Health and Quality of Life Outcomes, September 2018
|
| DOI | 10.1186/s12955-018-0990-z |
| Pubmed ID | |
| Authors |
Johannes Gräske, Annika Schmidt, Sylvia Schmidt, Franziska Laporte Uribe, Jochen René Thyrian, Bernhard Michalowsky, Susanne Schäfer-Walkmann, Karin Wolf-Ostermann |
| Abstract |
The majority of individuals with dementia live in the community; thus, regional dementia care networks are becoming increasingly more important for the provision of care. To date, four different types of dementia care networks have been identified in Germany (stakeholder, organisation, hybrid, mission); however, the effect on the quality of life of persons with dementia using such network services has not yet been examined. Moreover, the possible differences in the effect on the quality of life among the four types of dementia care networks have not been investigated. Therefore, the aim of the present study was to describe the changes over time in the quality of life of persons with dementia, assessing the association with the different types of dementia care networks. Within the DemNet-D study, face-to-face interviews with persons with dementia and their primary caregivers were conducted to collect data of typical outcome parameters, such as quality of life (Quality of Life Alzheimers Disease: QoL-AD), sociodemographic data, social index (Scheuch-Winkler), depression (Geriatric Depression Scale: GDS), challenging behaviour (Cohen-Mansfield Agitation Inventory: CMAI), capacities of daily living (Instrumental Activity of Daily Living: IADL), impairment due to dementia (FAST), and caregiver burden. In addition to these parameters, the differences in quality of life scores among the four types of dementia care networks were analysed using multi-level analysis. In total, 407 persons with dementia (79.1 years; 60.1% female) and their caregivers were included in the analysis. Over 75% of the persons with dementia showed moderate to (very) severe impairments of dementia and at least one challenging behaviour. At baseline, 60.6% had a low social index. Quality of life was stable over one-year on a level slightly above average (baseline 29.1; follow-up 28.7). Multi-level analyses (p < 0.001; R2 = 0.183) show that persons with dementia with higher QoL-AD scores at baseline were associated with a decline at follow-up. No significant differences among the types of dementia care networks were found. Users of dementia care network services showed a stable QoL-AD score over time at a level slightly above average, indicating no decrease or worsening over time as expected. Therefore, dementia care network services can be considered as a beneficial model of care in terms of the quality of life of persons with dementia, regardless of their special organisational type. |
X Demographics
The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Canada | 2 | 50% |
| Spain | 1 | 25% |
| Unknown | 1 | 25% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 4 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 89 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 89 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 11 | 12% |
| Researcher | 9 | 10% |
| Student > Ph. D. Student | 6 | 7% |
| Other | 5 | 6% |
| Student > Postgraduate | 5 | 6% |
| Other | 12 | 13% |
| Unknown | 41 | 46% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 17 | 19% |
| Medicine and Dentistry | 9 | 10% |
| Psychology | 6 | 7% |
| Social Sciences | 4 | 4% |
| Agricultural and Biological Sciences | 2 | 2% |
| Other | 10 | 11% |
| Unknown | 41 | 46% |
Attention Score in Context
This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 30 November 2018.
All research outputs
#12,913,076
of 23,103,436 outputs
Outputs from Health and Quality of Life Outcomes
#1,000
of 2,190 outputs
Outputs of similar age
#156,615
of 337,432 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#46
of 53 outputs
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