Title |
Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives
|
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Published in |
Journal of Autism and Developmental Disorders, December 2015
|
DOI | 10.1007/s10803-015-2637-9 |
Pubmed ID | |
Authors |
Sydney H. Kinnear, Bruce G. Link, Michelle S. Ballan, Ruth L. Fischbach |
Abstract |
Stigma is widely perceived in the lives of families with autism spectrum disorder (ASD) yet large, systematic studies have not been undertaken. Following Link and Phelan's (Ann Rev Sociol 27:363-385, 2001) model, this study of 502 Simons Simplex Collection families details how different factors contribute to stigma and how each appears to increase the overall difficulty of raising a child with ASD. The model begins with the child's behavioral symptoms and then specifies stigma processes of stereotyping, rejection, and exclusion. Autism behaviors contribute both to the difficulty families experience raising a child with autism and to the stigma processes associated with those behaviors. Stigma also plays a significant role (.282, p < .001) in predicting how difficult life is overall for parents. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 2 | 67% |
Unknown | 1 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 3 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 450 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 80 | 18% |
Student > Bachelor | 58 | 13% |
Student > Ph. D. Student | 50 | 11% |
Student > Doctoral Student | 43 | 10% |
Researcher | 29 | 6% |
Other | 64 | 14% |
Unknown | 126 | 28% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 144 | 32% |
Social Sciences | 63 | 14% |
Medicine and Dentistry | 35 | 8% |
Nursing and Health Professions | 33 | 7% |
Arts and Humanities | 10 | 2% |
Other | 34 | 8% |
Unknown | 131 | 29% |