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Parental Experience of Information and Education Processes Following Diagnosis of Their Infant With Cystic Fibrosis Via Newborn Screening

Overview of attention for article published in Journal of Pediatric Nursing, December 2015
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Title
Parental Experience of Information and Education Processes Following Diagnosis of Their Infant With Cystic Fibrosis Via Newborn Screening
Published in
Journal of Pediatric Nursing, December 2015
DOI 10.1016/j.pedn.2015.11.010
Pubmed ID
Authors

Melanie Jessup, Tonia Douglas, Lynn Priddis, Cindy Branch-Smith, Linda Shields, AREST-CF

Abstract

Following diagnosis with cystic fibrosis (CF), initial education powerfully influences parental adjustment and engagement with care teams. This study explored the education needs of ten parents following their infant's diagnosis with CF via newborn screening. Phenomenological study using van Manen's approach, with ten participant parents of children 1-8 years with CF. Parents recounted varying degrees of coping with information they acknowledged as overwhelming and difficult. For some it was too much too soon, while others sought such clarity to put CF into context. Participants delivered insight into their engagement with their education about CF. Their recommendations for appropriate context, content, format and timing of delivery enable development of education that is accurate and relevant.

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The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 80 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 80 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 15%
Student > Bachelor 11 14%
Student > Ph. D. Student 10 13%
Researcher 5 6%
Other 5 6%
Other 10 13%
Unknown 27 34%
Readers by discipline Count As %
Nursing and Health Professions 18 23%
Psychology 10 13%
Social Sciences 7 9%
Medicine and Dentistry 4 5%
Agricultural and Biological Sciences 2 3%
Other 9 11%
Unknown 30 38%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 25 December 2015.
All research outputs
#22,760,732
of 25,374,917 outputs
Outputs from Journal of Pediatric Nursing
#1,009
of 1,152 outputs
Outputs of similar age
#338,614
of 396,228 outputs
Outputs of similar age from Journal of Pediatric Nursing
#22
of 23 outputs
Altmetric has tracked 25,374,917 research outputs across all sources so far. This one is in the 1st percentile – i.e., 1% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,152 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 6.5. This one is in the 1st percentile – i.e., 1% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 396,228 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 23 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.