| Title |
Experience Gained from the Development and Execution of a Multidisciplinary Multi-syndrome Hereditary Colon Cancer Family Conference
|
|---|---|
| Published in |
Journal of Cancer Education, September 2018
|
| DOI | 10.1007/s13187-018-1430-9 |
| Pubmed ID | |
| Authors |
Ilana Solomon, Christina Rybak, Lily Van Tongeren, Lili Kuzmich, Kathleen Blazer, Bita Nehoray, Mariana Niell-Swiller, Shawnie Bray, Travis H. Bray, Karen Hurley, Jeffrey N. Weitzel, Thomas P. Slavin |
| Abstract |
Genetic healthcare professionals provide genetic cancer risk assessment and follow-up care for patients facing hereditary cancers. To meet the needs of those affected by hereditary colorectal cancer, City of Hope and the Hereditary Colon Cancer Foundation collaborated to develop a "Family Day" conference. We describe the development of our conference based upon the Hereditary Colon Cancer Foundation's "Family Day" program model, with refinements completed using the Participatory Action Research theoretical framework, which incorporated input from conference participants and researchers. Thirty-one participants attended the conference, representing patients with, or families, friends, and caregivers of those with, multiple colorectal cancer predisposition syndromes, including Lynch, familial adenomatous polyposis, and juvenile polyposis. Participants who completed the feedback surveys (n = 22) were highly satisfied with the presentation content, ranking the keynote lecture on family communication the highest of the conference events. Participants also provided feedback regarding how to improve future conferences. In conclusion, we share our experience and provide guidance for developing a successful hereditary colon cancer predisposition patient and family conference. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 21 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 21 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 2 | 10% |
| Student > Ph. D. Student | 2 | 10% |
| Librarian | 1 | 5% |
| Student > Doctoral Student | 1 | 5% |
| Researcher | 1 | 5% |
| Other | 2 | 10% |
| Unknown | 12 | 57% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 3 | 14% |
| Medicine and Dentistry | 3 | 14% |
| Social Sciences | 2 | 10% |
| Unknown | 13 | 62% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 28 September 2018.
All research outputs
#20,535,139
of 23,105,443 outputs
Outputs from Journal of Cancer Education
#1,037
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Outputs of similar age
#297,074
of 341,808 outputs
Outputs of similar age from Journal of Cancer Education
#12
of 16 outputs
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