| Title |
Global study of primary immunodeficiency diseases (PI)—diagnosis, treatment, and economic impact: an updated report from the Jeffrey Modell Foundation
|
|---|---|
| Published in |
Immunologic Research, September 2011
|
| DOI | 10.1007/s12026-011-8241-y |
| Pubmed ID | |
| Authors |
Vicki Modell, Bonnie Gee, David B. Lewis, Jordan S. Orange, Chaim M. Roifman, John M. Routes, Ricardo U. Sorensen, Luigi D. Notarangelo, Fred Modell |
| Abstract |
A large population of patients with recurring infections are undiagnosed or under diagnosed and Primary Immunodeficiency (PI) is more common than had been previously estimated. The results strongly indicate the measurable impact of Physician Education and Public Awareness in identifying patients with an underlying PI. The Jeffrey Modell Centers Network (JMCN) provides the infrastructure for referral, diagnosis and appropriate treatment. All disease classifications and identified defects increased significantly over the study period. Quality of Life for referred and diagnosed patients dramatically improved compared to undiagnosed patients. There is a substantial cost savings for diagnosed patients compared to undiagnosed, even if regular IgG is required. The SPIRIT(®) Software successfully identified patients with PI in a large database and at three pilot sites. The Software was successfully tested for specificity and sensitivity. |
Mendeley readers
The data shown below were compiled from readership statistics for 121 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Mexico | 1 | <1% |
| Brazil | 1 | <1% |
| Unknown | 119 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 15 | 12% |
| Student > Bachelor | 14 | 12% |
| Student > Ph. D. Student | 13 | 11% |
| Other | 13 | 11% |
| Researcher | 9 | 7% |
| Other | 31 | 26% |
| Unknown | 26 | 21% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 53 | 44% |
| Immunology and Microbiology | 12 | 10% |
| Agricultural and Biological Sciences | 10 | 8% |
| Biochemistry, Genetics and Molecular Biology | 7 | 6% |
| Nursing and Health Professions | 3 | 2% |
| Other | 7 | 6% |
| Unknown | 29 | 24% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 06 January 2012.
All research outputs
#17,700,438
of 25,837,817 outputs
Outputs from Immunologic Research
#618
of 954 outputs
Outputs of similar age
#101,859
of 143,433 outputs
Outputs of similar age from Immunologic Research
#8
of 9 outputs
Altmetric has tracked 25,837,817 research outputs across all sources so far. This one is in the 21st percentile – i.e., 21% of other outputs scored the same or lower than it.
So far Altmetric has tracked 954 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 10.7. This one is in the 26th percentile – i.e., 26% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 143,433 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 17th percentile – i.e., 17% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 9 others from the same source and published within six weeks on either side of this one.