| Title |
HOLD study (Home care Obstructive Lung Disease): natural history of patients with advanced COPD
|
|---|---|
| Published in |
BMC Palliative Care, March 2016
|
| DOI | 10.1186/s12904-016-0104-9 |
| Pubmed ID | |
| Authors |
Daniel Gainza Miranda, Eva María Sanz Peces, Alberto Alonso Babarro, Maria Concepción Prados Sánchez, María Varela Cerdeira |
| Abstract |
Chronic obstructive pulmonary disease (COPD) is the fourth cause of death in western countries. Its final stage has clearly been forgotten by medical research in recent years. There exists consensus regarding the need to integrate palliative care in assisting these patients, but the difficulty in establishing a prognosis for the disease, establishing limits for life support measures, the lack of information about the disease's natural course and ignorance as to the most effective health-care structure for these patients' palliative treatment may be responsible for their late inclusion or non-inclusion in specific programmes. The main purpose of this work is to find out the natural background of patients with stage IV COPD and the main prognostic factors that influence these patients' survival. Prospective observational study of a home patient cohort with stage IV COPD sent from Neumology consultations and Palliative Care Unit in La Paz Hospital in Madrid and Primary Care Health Centres in the area to the palliative care home support team. The goal is to study socio-demographic variables, prognosis, nutritional status, use of health resources, perceived quality of life, functionality, main symptomatology, use and effectiveness of opioids, adherence to treatment, prognostic information regarding the disease, information given by professionals, advance directives, social backup requirements and overburden level of the main caregiver. The HOLD study is a project aimed at finding out the prognostic factors and evolution of the disease COPD in its most advanced stage. The final goal is to improve the health and quality of life, in a personalised, integral way up to end of life and explore and foster communication with patients, as well as their participation and collaboration in decision-taking. The HOLD study can help us better understand what these patients' real palliative and care needs are, in order to more efficiently organise their treatment at end of life. |
X Demographics
The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 1 | 25% |
| France | 1 | 25% |
| Unknown | 2 | 50% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 3 | 75% |
| Science communicators (journalists, bloggers, editors) | 1 | 25% |
Mendeley readers
The data shown below were compiled from readership statistics for 169 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Japan | 1 | <1% |
| Unknown | 168 | 99% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 25 | 15% |
| Researcher | 19 | 11% |
| Student > Ph. D. Student | 17 | 10% |
| Student > Bachelor | 15 | 9% |
| Student > Doctoral Student | 11 | 7% |
| Other | 31 | 18% |
| Unknown | 51 | 30% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 41 | 24% |
| Medicine and Dentistry | 35 | 21% |
| Social Sciences | 8 | 5% |
| Psychology | 7 | 4% |
| Business, Management and Accounting | 4 | 2% |
| Other | 17 | 10% |
| Unknown | 57 | 34% |
Attention Score in Context
This research output has an Altmetric Attention Score of 4. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 20 September 2016.
All research outputs
#8,002,009
of 25,481,734 outputs
Outputs from BMC Palliative Care
#887
of 1,523 outputs
Outputs of similar age
#105,771
of 314,580 outputs
Outputs of similar age from BMC Palliative Care
#21
of 29 outputs
Altmetric has tracked 25,481,734 research outputs across all sources so far. This one has received more attention than most of these and is in the 67th percentile.
So far Altmetric has tracked 1,523 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.2. This one is in the 41st percentile – i.e., 41% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 314,580 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 65% of its contemporaries.
We're also able to compare this research output to 29 others from the same source and published within six weeks on either side of this one. This one is in the 31st percentile – i.e., 31% of its contemporaries scored the same or lower than it.