| Title |
Underutilization of Genetics Services for Autism: The Importance of Parental Awareness and Provider Recommendation
|
|---|---|
| Published in |
Journal of Genetic Counseling, March 2012
|
| DOI | 10.1007/s10897-012-9494-x |
| Pubmed ID | |
| Authors |
Kimberly Vande Wydeven, Andrea Kwan, Antonio Y. Hardan, Jonathan A. Bernstein |
| Abstract |
Reasons for the underutilization of genetics services by families of children with autism spectrum disorders (ASD) are not well understood. We report the identification of factors associated with this underuse. Survey-based study of parents and/or guardians of children with ASD. One hundred fifty-five families completed the questionnaire. Thirty-one of 155 (20%) children had seen a genetics professional. Forty-nine of 154 (32%) children had undergone genetic testing. Parents whose child saw a genetics professional were more likely to 1) Have a primary provider refer for or suggest a genetics evaluation 2) Have asked for a referral, and/or 3) Know another person with a genetic cause of ASD. amilies of children with ASD who have not received genetics services are less aware of their availability and utility. They are also less likely to have their provider recommend a clinical genetics evaluation. Efforts should be taken to increase awareness of both health providers and parents regarding the usefulness of genetics services for ASD. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 84 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 84 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 26 | 31% |
| Student > Ph. D. Student | 10 | 12% |
| Researcher | 9 | 11% |
| Other | 8 | 10% |
| Student > Bachelor | 7 | 8% |
| Other | 13 | 15% |
| Unknown | 11 | 13% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 19 | 23% |
| Psychology | 16 | 19% |
| Biochemistry, Genetics and Molecular Biology | 9 | 11% |
| Nursing and Health Professions | 7 | 8% |
| Agricultural and Biological Sciences | 6 | 7% |
| Other | 14 | 17% |
| Unknown | 13 | 15% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 15 March 2012.
All research outputs
#17,489,487
of 25,654,806 outputs
Outputs from Journal of Genetic Counseling
#864
of 1,293 outputs
Outputs of similar age
#111,216
of 169,588 outputs
Outputs of similar age from Journal of Genetic Counseling
#8
of 10 outputs
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