| Title |
Parents’ Perspectives on Participating in Genetic Research in Autism
|
|---|---|
| Published in |
Journal of Autism and Developmental Disorders, July 2012
|
| DOI | 10.1007/s10803-012-1592-y |
| Pubmed ID | |
| Authors |
Magan Trottier, Wendy Roberts, Irene Drmic, Stephen W. Scherer, Rosanna Weksberg, Cheryl Cytrynbaum, David Chitayat, Cheryl Shuman, Fiona A. Miller |
| Abstract |
Genetic research in autism depends on the willingness of individuals with autism to participate; thus, there is a duty to assess participants' needs in the research process. We report on families' motives and expectations related to their participation in autism genetic research. Respondents valued having a genetic result, as it alleviates guilt, promotes awareness, and may be used to tailor interventions and for family planning. The act of participating was distinctly significant, as it provided personal control, a connection to autism experts, networking with families, and hope for the future. The results of this study highlight complex factors involved in families' decisions to participate in autism genetic research and provide points to consider for this population of research participants. |
X Demographics
The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | 33% |
| Canada | 1 | 33% |
| Unknown | 1 | 33% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 67% |
| Scientists | 1 | 33% |
Mendeley readers
The data shown below were compiled from readership statistics for 97 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 1 | 1% |
| United States | 1 | 1% |
| Brazil | 1 | 1% |
| Unknown | 94 | 97% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Researcher | 18 | 19% |
| Student > Ph. D. Student | 16 | 16% |
| Student > Master | 15 | 15% |
| Student > Doctoral Student | 9 | 9% |
| Other | 6 | 6% |
| Other | 12 | 12% |
| Unknown | 21 | 22% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 32 | 33% |
| Medicine and Dentistry | 12 | 12% |
| Social Sciences | 9 | 9% |
| Biochemistry, Genetics and Molecular Biology | 5 | 5% |
| Nursing and Health Professions | 4 | 4% |
| Other | 11 | 11% |
| Unknown | 24 | 25% |
Attention Score in Context
This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 06 August 2012.
All research outputs
#14,954,534
of 23,867,274 outputs
Outputs from Journal of Autism and Developmental Disorders
#3,697
of 5,240 outputs
Outputs of similar age
#98,966
of 166,302 outputs
Outputs of similar age from Journal of Autism and Developmental Disorders
#44
of 65 outputs
Altmetric has tracked 23,867,274 research outputs across all sources so far. This one is in the 37th percentile – i.e., 37% of other outputs scored the same or lower than it.
So far Altmetric has tracked 5,240 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 13.2. This one is in the 28th percentile – i.e., 28% of its peers scored the same or lower than it.
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