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The Ethics of Biomedical Big Data

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Cover of 'The Ethics of Biomedical Big Data'

Table of Contents

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    Book Overview
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    Chapter 1 Introduction
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    Chapter 2 “Strictly Biomedical? Sketching the Ethics of the Big Data Ecosystem in Biomedicine”
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    Chapter 3 Using Transactional Big Data for Epidemiological Surveillance: Google Flu Trends and Ethical Implications of ‘Infodemiology’
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    Chapter 4 Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country
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    Chapter 5 A Critical Examination of Policy-Developments in Information Governance and the Biosciences
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    Chapter 6 Many Have It Wrong – Samples Do Contain Personal Data: The Data Protection Regulation as a Superior Framework to Protect Donor Interests in Biobanking and Genomic Research
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    Chapter 7 What’s Wrong with the Right to Genetic Privacy: Beyond Exceptionalism, Parochialism and Adventitious Ethics
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    Chapter 8 How Data Are Transforming the Landscape of Biomedical Ethics: The Need for ELSI Metadata on Consent
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    Chapter 9 On the Compatibility of Big Data Driven Research and Informed Consent: The Example of the Human Brain Project
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    Chapter 10 Big Data Governance: Solidarity and the Patient Voice
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    Chapter 11 Premises for Clinical Genetics Data Governance: Grappling with Diverse Value Logics
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    Chapter 12 State Responsibility and Accountability in Managing Big Data in Biobank Research: Tensions and Challenges in the Right of Access to Data
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    Chapter 13 Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data
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    Chapter 14 Researchers’ Duty to Share Pre-publication Data: From the Prima Facie Duty to Practice
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    Chapter 15 Reporting and Transparency in Big Data: The Nexus of Ethics and Methodology
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    Chapter 16 Creating a Culture of Ethics in Biomedical Big Data: Adapting ‘Guidelines for Professional Practice’ to Promote Ethical Use and Research Practice
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    Chapter 17 The Ethics and Politics of Infrastructures: Creating the Conditions of Possibility for Big Data in Medicine
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    Chapter 18 Ethical Reuse of Data from Health Care: Data, Persons and Interests
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    Chapter 19 The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
Overall attention for this book and its chapters
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64 X users
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Citations

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Title
The Ethics of Biomedical Big Data
Published by
Springer International Publishing, January 2016
DOI 10.1007/978-3-319-33525-4
ISBNs
978-3-31-933523-0, 978-3-31-933525-4
Editors

Brent Daniel Mittelstadt, Luciano Floridi

X Demographics

X Demographics

The data shown below were collected from the profiles of 64 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 8 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Ireland 1 13%
Belgium 1 13%
Unknown 6 75%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 3 38%
Unspecified 1 13%
Student > Master 1 13%
Student > Bachelor 1 13%
Student > Postgraduate 1 13%
Other 1 13%
Readers by discipline Count As %
Unspecified 2 25%
Philosophy 1 13%
Environmental Science 1 13%
Mathematics 1 13%
Computer Science 1 13%
Other 2 25%