Title |
The efficacy of a standardized questionnaire in facilitating personalized communication about problems encountered in cancer genetic counseling: design of a randomized controlled trial
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Published in |
BMC Cancer, January 2014
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DOI | 10.1186/1471-2407-14-26 |
Pubmed ID | |
Authors |
Willem Eijzenga, Neil K Aaronson, Irma Kluijt, Grace N Sidharta, Daniela EE Hahn, Margreet GEM Ausems, Eveline MA Bleiker |
Abstract |
Individuals with a personal or family history of cancer, can opt for genetic counseling and DNA-testing. Approximately 25% of these individuals experience clinically relevant levels of psychosocial distress, depression and/or anxiety after counseling. These problems are frequently left undetected by genetic counselors. The aim of this study is to evaluate the efficacy of a cancer genetics-specific screening questionnaire for psychosocial problems, the 'Psychosocial Aspects of Hereditary Cancer (PAHC) questionnaire' together with the Distress Thermometer, in: (1) facilitating personalized counselor-counselee communication; (2) increasing counselors' awareness of their counselees' psychosocial problems; and (3) facilitating the management of psychosocial problems during and after genetic counseling. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 50% |
Unknown | 1 | 50% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 1 | 50% |
Members of the public | 1 | 50% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | <1% |
Unknown | 112 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 19 | 17% |
Student > Ph. D. Student | 15 | 13% |
Researcher | 14 | 12% |
Other | 5 | 4% |
Student > Doctoral Student | 5 | 4% |
Other | 24 | 21% |
Unknown | 31 | 27% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 28 | 25% |
Psychology | 27 | 24% |
Nursing and Health Professions | 8 | 7% |
Social Sciences | 6 | 5% |
Agricultural and Biological Sciences | 3 | 3% |
Other | 10 | 9% |
Unknown | 31 | 27% |