Title |
Developing and assessing the utility of a You-Tube based clinical genetics video channel for families affected by inherited tumours
|
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Published in |
Familial Cancer, January 2016
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DOI | 10.1007/s10689-016-9866-8 |
Pubmed ID | |
Authors |
G. E. Jones, J. H. Singletary, A. Cashmore, V. Jain, J. Abhulimhen, J. Chauhan, H. V. Musson, J. G. Barwell |
Abstract |
We have designed and implemented the first worldwide You Tube channel with 22 videos covering common questions asked in familial cancer susceptibility clinics. We discuss the use of the videos including demographics of registered You Tube users, and what lessons have been learnt about how the general public uses medical information online. The most popular video on inheritance patterns has been watched on average 84 times per month. The mostly highly viewed videos include inheritance patterns, breast cancer screening and hereditary non-polyposis colorectal cancer. Registered viewers were more commonly male and the average age of the registered user was 45-54 years; similar to that seen in Genetics Clinics suggesting that age may not be a major barrier to access to this type of information for patients. The videos have been viewed in more than 140 countries confirming that there is clearly an audience for this type of information. Patient feedback questionnaires indicate that these videos provide a useful aide memoir for the clinic appointment, and most people would recommend them to others. In summary, You Tube videos are easy and cost effective to make. They have the ability to disseminate genetics education to a worldwide audience and may be a useful adjunct to clinical appointments. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 2 | 67% |
Unknown | 1 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 2 | 67% |
Practitioners (doctors, other healthcare professionals) | 1 | 33% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Switzerland | 1 | 2% |
Unknown | 53 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 15 | 28% |
Student > Master | 6 | 11% |
Student > Ph. D. Student | 5 | 9% |
Student > Bachelor | 4 | 7% |
Professor > Associate Professor | 3 | 6% |
Other | 10 | 19% |
Unknown | 11 | 20% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 14 | 26% |
Social Sciences | 6 | 11% |
Biochemistry, Genetics and Molecular Biology | 6 | 11% |
Nursing and Health Professions | 4 | 7% |
Psychology | 4 | 7% |
Other | 6 | 11% |
Unknown | 14 | 26% |