Home enteral nutrition in Spain; NADYA registry 2011-2012.

Carmina Wanden-Berghe, P Matía Martín, L M Luengo Pérez, C Cuerda Compes, R Burgos Peláez, J Alvarez Hernández, A Calleja Fernández, A Pérez de la Cruz, C Gómez Candela, P Leyes García, L Laborda González, M A Martínez Olmos, C Campos Martín, J P Suárez Llanos, M A Penacho Lázaro, M Gonzalo Marín, J Salas Salvadó, J A Irles Rocamora, B Cánovas Gaillemin, M C Carrero Caballero, J M Moreno Villares, C Garde Orbaiz, N Miserachs Aranda, M D Del Olmo García, A Apezetxea Celaya, S Mauri

Objective: To describe the results of the home enteral nutrition (HEN) registry of the NADYA-SENPE group in 2011 and 2012. Material and methods: We retrieved the data of the patients recorded from January 1st 2011 to December 31st 2012. Results: There were 3021 patients in the registry during the period from 29 hospitals, which gives 65.39 per million inhabitants. 97.95% were adults, 51.4% male. Mean age was 67.64 ± 19.1, median age was 72 years for adults and 7 months for children. Median duration with HEN was 351 days and for 97.5% was their first event with HEN. Most patients had HEN because of neurological disease (57.8%). Access route was nasogastric tube for 43.5% and gastrostomy for 33.5%. Most patients had limited activity level and, concerning autonomy, 54.8% needed total help. Nutritional formula was supplied from chemist's office to 73.8% of patients and disposables, when necessary, was supplied from hospitals to 53.8% of patients. HEN was finished for 1,031 patients (34.1%) during the period of study, 56.6% due to decease and 22.2% due to recovery of oral intake. Conclusions: Data from NADYA-SENPE registry must be explained cautiously because it is a non-compulsory registry. In spite of the change in the methodology of the registry in 2010, tendencies regarding HEN have been maintained, other than oral route.