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Home parenteral nutrition in Spain 2011 and 2012; a report of the home and ambulatory artificial nutrition group NADYA.

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Title
Home parenteral nutrition in Spain 2011 and 2012; a report of the home and ambulatory artificial nutrition group NADYA.
Published in
Nutrición Hospitalaria, June 2014
DOI 10.3305/nh.2014.29.6.7372
Pubmed ID
Authors

Carmina Wanden-Berghe, J M Moreno Villarés, C Cuerda Compés, C Carrero, R Burgos, C Gómez Candela, N Virgili Casas, C Martínez Faedo, J Alvarez, E A Sánchez Martos, P Matía Martín, A Zugasti, G Olveira, L M Luengo, C Campos Martín, T Martín Folgueras, M A Penacho Lázaro, J L Pereira, C Garde Orbaiz, A Pérez de la Cruz, A Apezetxea, O Sánchez-Vilar, M C Gil Martínez, C Martínez Costa, D De Luis, L Laborda, C Joaquin Ortiz, J P Suárez Llanos, P Leyes García, M A Ponce González

Abstract

Objective: To report the data of the Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE working group for the years 2011 and 2012. Methodology: We compiled the data from the on-line registry introduced by reviewers of NADYA group responsible for monitoring of NPD introduced by since January 1, 2011 to december 31, 2012. Included fields were: age, sex, diagnosis and reason for HPN, access path, complications, beginning and end dates, complementary oral or enteral nutrition, activity level, autonomy degree, product and fungible material supply, withdrawal reason and intestinal transplant indication. Results: Year 2010: 184 patients from 29 hospitals , representing a rate of 3.98 patients/million inhabitants/ year 2011, with 186 episodes were recorded NPD . During 2012, 203 patients from 29 hospitals , representing a rate of 4.39 patients/million inhabitants/year 2012 , a total of 211 episodes were recorded NPD . Conclusions: We observe an increase in registered patients with respect to previous years.Neoplasia remains as the main pathology since 2003. Although NADYA is consolidated registry and has been indispensable source of information relevant to the understanding of the progress of Home Artificial Nutrition in our country, there is ample room for improvement. Especially that refers to the registration of pediatric patients and the registration of complications.

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Geographical breakdown

Country Count As %
Denmark 1 4%
Unknown 25 96%

Demographic breakdown

Readers by professional status Count As %
Researcher 6 23%
Student > Ph. D. Student 3 12%
Other 2 8%
Student > Bachelor 2 8%
Professor 1 4%
Other 2 8%
Unknown 10 38%
Readers by discipline Count As %
Medicine and Dentistry 7 27%
Nursing and Health Professions 2 8%
Engineering 2 8%
Social Sciences 2 8%
Psychology 1 4%
Other 1 4%
Unknown 11 42%