A Home and Ambulatory Artificial Nutrition (NADYA) group report, Home Parenteral Nutrition in Spain, 2013.

Carmina Wanden-Berghe, J Cristina Cuerda Compes, Rosa Burgos Peláez, Carmen Gómez Candela, Nuria Virgili Casas, Antonio Pérez de la Cruz, José Manuel Moreno Villares, Fátima Carabaña Pérez, Carmen Garde Orbaiz, Ceferino Martínez Faedo, Ma Ángeles Penacho Lázaro, Montserrat Gonzalo Marín, Pedro Pablo García Luna, Pilar Matía Martín, Alejandro Sanz Paris, Luis Miguel Luengo Pérez, Tomás Martín Folgueras, María Victoria García Zafra, Álvarez Hernández, Cristina Campos Martín, José Pablo Suárez Llanos, Ana Zugasti, Antxón Apezetxea Celaya, Juan Ramon Urgeles Planella, Lucía Laborda González, Olga Sánchez-Vilar Burdiel, Clara Joaquín Ortiz, Cecilia Martínez Costa, Alfonso Vidal Casariego, Pere Leyes García, Miguel Angel Ponce González, Ma Carmen Gil Martínez, Eva Ángeles Sánchez Martos, Ma Dolores del Olmo García, Patricia Díaz Guardiola

to communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013. data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013. a total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40 - 64) for 189 adult patients and 7 months (IQR 6 - 35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by "resumed oral via" (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002. the number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult's principal reason for finalizing HPN and "resuming oral via" for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group.